Has anyone with CVID had formal genetic testing at Brigham and Women's?

Vineyard1

Senior Member
Messages
109
Likes
118
Hi,

I have had chronic bacterial and viral infections for decades...diagnosed with ME/ CFS 18 years ago and a Primary Immune Defeciency three years ago and placed on IVIG...has anyone been referred ( or referred themselves) for formal genetic testing?
I am trying to get an appointment with the Genetics Department at Brigham and Women's in Boston.
If you have seen a Genetics Team were the results informative and useful?
Thanks!