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If YES - how did you do it?
Or if NO - and you think your info would be helpful, please share.
THX!
Or if NO - and you think your info would be helpful, please share.
THX!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Dr. Fluge who is studying the use of Rituximab for me/cfs has been clear in stating that Rituximab NOT be used outside of clinical trials/studies at this point. The drug comes with significant risks and possible side effects. It also must be administered in a hospital setting due to the risks.If YES - how did you do it?
Or if NO - and you think your info would be helpful, please share.
THX!
If YES - how did you do it?
Or if NO - and you think your info would be helpful, please share.
THX!
If YES - how did you do it?
Or if NO - and you think your info would be helpful, please share.
THX!
Sadly, much as I'm sure many of us would like to believe otherwise (myself included), I suspect Rituximab will never be obtainable as a treatment for ME/CFS on the NHS even if the most exhaustive clinical trials show it to be an effective treatment in a proportion of sufferers.I know that you are in the USA but here in the UK (for reasons already stated in the replies so far) this is not a drug that is going to be prescribed for ME/CFS on the NHS outside a clinical trial in our present state of knowledge regarding safety and efficacy in the treatment of ME/CFS
And there isn't really any possibility of an insurer paying for private treatment with rituximab outside the NHS
Sadly, much as I'm sure many of us would like to believe otherwise (myself included), I suspect Rituximab will never be obtainable as a treatment for ME/CFS on the NHS even if the most exhaustive clinical trials show it to be an effective treatment in a proportion of sufferers.
If NICE won't fund the use of cancer drugs such as Ramucirumab, Regorafenib, Nivulomab, Kadcycla et al. for patients who are dying, I can see little prospect of them ever funding Rituximab for patients who, according to the official line, don't even have a life-threatening illness.
In any future NHS I can envisage on current showing, "cost-effectiveness" considerations will put Rituximab out of reach for the vast majority of the ME/CFS community, even if it's shown beyond all doubt that it is a safe and effective treatment for the condition, and even if NICE can bring themsleves to acknowledge this.