@taniaaust1
The hospital dr was good and he tried to arrange temporary accommodation for me till the bullshit with services is sorted and my house can be cleaned and livable again... but unfortunately due to the MCS, we can not put me into temporary accommodation as the place was shared. Er doctor also tried to reach my case worker who has failed to put my supports in place but he was unable to reach her (AGAIN.. hospital tries everytime I end up there and get a good dr).
Oh, tania, this is just awful. Truly, truly awful. And I feel completely helpless.
It's
appalling that your case manager has been allowed to screw up so thoroughly, so completely and so constantly, and it really makes me worry even more about a guardianship. Case workers are, essentially, an informal guardian, assigned to you to help you avoid exactly these sorts of circumstances. This miserable excuse for a human being should NEVER have been allowed to take their appalling incompetence this far, where is the effing oversight.
things are a mess .. a big mess.. everything is mess and I cant cope
How
could you cope right now? That's what your case worker should have ben helping avoid. Oh, tania, my heart goes out to you. This is soooooo way much more stress than you can handle right now, or should have to handle,
ever.
I have NOONE who understands severe ME/CFS working with me (I do not even have a dr anymore or ME/CFS specialist)... I'm now on last resorts).
I swear to you, something good is going to come of all this. There's some little miracle coming at you, there just
has to be. Please try to focus on that, and believe it. I know it seems like a pipe-dream, I know that everything seems hopelessly balled-up right now, but I've seen it happen to others and to myself.
But things should not be getting to this state in the first place, which they are as my support case manager sucks and does not organise anything and I have not managed to sort things myself (I end up going around in circles when I try due to my memory issues. My brain is having trouble retaining info).. (and that is just one of all the urgent issues I have right now, issues I'm needing help in sorting).
I totally, completely, hear you on the brain thing. WHen I was at my extreme worst, even the smallest decision, the smallest challenge, the tiniest issue, would put my brain into spin cycle, going around and around, faster and faster, and trying desperately to find the priority, to grasp the method, the way. It was impossible to do.
I'm sending you ferocious prayers and hope. I wish I could send you an honest, kind, committed guardian, like
@Hufsamor. They do exist.