Hey all,
By way of introduction, I'm fairly new to the forum, so if my post's content is inappropriate for this subforum, please excuse me.
I'm suffering from a strange form of CFS/ME, which is totally beyond the scope of your classical CFS/ME models (if there is such a thing!).
18 months ago, I was drinking from a copper cup, while eating lots of fatty red meat, along with not too many daily carbohydrates, as well as finally throwing in the straw that broke the camel's back - an obscure SBO probiotic from Japan called "Prolisan", containing (or harboring!) a species known as S(treptomyces). Griseus.
After taking the probiotic, I became strangely ill - I couldn't sleep a wink, I was not going to the toilet, but I was strangely not constipated, my poo started to smell very earthy, I was peeing almost constantly, I tended to have more foamy pee than before (which I later discovered escalated the less carbohydrates I ate) and gradually, I noticed that my skin was breaking down and thinning in many places (collagen loss/destruction).
When all of this began, my body felt really wound up and I would go to bed each night and lay there the entire night without sleeping, which I found totally bizarre (there had been no psychological traumas around that time - business as usual for my psyche!). It was as if some unknown force was winding my body up.
Gradually, I noticed that my joints were becoming weak and cracky, while my skin seemed to be thinning rapidly in places like my face, hands, neck, feet/toes. Eventually, I noticed that the more carbohydrates I ate, the less bubble I had in my urine and the less I would lose collagen. It seemed that when my body had used its carbohydrate stores (blood sugar, glycogen etc.), it could not switch over to fat burning mode somehow. The strange thing was, my body seemed to burn collagen rather than fat stores and muscle tissue...I had never read about this anywhere.
Suffice to say that my doctors don't believe that I have this problem, but it is literally killing me piece by piece.
I reasoned that somehow the soil-based organism (SBO) in my gut was creating an out of control immune cascade (interleukins etc.), which was stimulating my LHPA axis to constantly create a situation of high cortisol, which was ultimately having the effect of not allowing my body to shuttle copper into cells and thereby creating an insufficiency of copper-based enzymes.
As my condition worsened, I noticed that VOCs could easily damage my vascular system, whereby whenever I'd go in a public place with perfumes, car fumes, cigarette smoke etc., I would sustain vascular injuries anywhere in my body. Sometimes, if the vascular damage was in my brain, I'd notice stroke-like symptoms, which were so extreme that my heart and lungs would shut down for a few seconds and I could no longer breathe.
I learned from Dr Myhill and Acumen Labs that my SOD activity was very low at 36%, indicating what I already suspected as either an actual or functional copper deficiency.
I believe that many systems in my body that require copper for "cuproenzymes" have virtually shutdown, including lysyl oxidase (to make collagen), cytochrome c oxidase (to make energy in mitochondria), super oxide dismutase (master anti-oxidant) etc. etc.
When I first took this soil-based probiotic, I had the feeling that I'd "died inside" as if my neurotransmitters had shifted to such an extent as a consequence of a badly deranged gut environment.
I was wondering if GcMAF in the form of MAF 314 or MAF 878 could help my gut rid itself of this S. Griseus organism, which may be feeding on all the biounavailable copper I'm harboring or something else, I'm not sure.
My life is virtually impossible to constantly keep feeding myself carbohydrates and avoiding VOCs as if my life depends on it, so either I may just die, or I have to beat what's disturbing my body to such a violent extent.
Does anyone have any advice please, particularly in the case of measuring cytokines and using GcMAF in different forms?
Thanks for your help.
Best,
Scotty
By way of introduction, I'm fairly new to the forum, so if my post's content is inappropriate for this subforum, please excuse me.
I'm suffering from a strange form of CFS/ME, which is totally beyond the scope of your classical CFS/ME models (if there is such a thing!).
18 months ago, I was drinking from a copper cup, while eating lots of fatty red meat, along with not too many daily carbohydrates, as well as finally throwing in the straw that broke the camel's back - an obscure SBO probiotic from Japan called "Prolisan", containing (or harboring!) a species known as S(treptomyces). Griseus.
After taking the probiotic, I became strangely ill - I couldn't sleep a wink, I was not going to the toilet, but I was strangely not constipated, my poo started to smell very earthy, I was peeing almost constantly, I tended to have more foamy pee than before (which I later discovered escalated the less carbohydrates I ate) and gradually, I noticed that my skin was breaking down and thinning in many places (collagen loss/destruction).
When all of this began, my body felt really wound up and I would go to bed each night and lay there the entire night without sleeping, which I found totally bizarre (there had been no psychological traumas around that time - business as usual for my psyche!). It was as if some unknown force was winding my body up.
Gradually, I noticed that my joints were becoming weak and cracky, while my skin seemed to be thinning rapidly in places like my face, hands, neck, feet/toes. Eventually, I noticed that the more carbohydrates I ate, the less bubble I had in my urine and the less I would lose collagen. It seemed that when my body had used its carbohydrate stores (blood sugar, glycogen etc.), it could not switch over to fat burning mode somehow. The strange thing was, my body seemed to burn collagen rather than fat stores and muscle tissue...I had never read about this anywhere.
Suffice to say that my doctors don't believe that I have this problem, but it is literally killing me piece by piece.
I reasoned that somehow the soil-based organism (SBO) in my gut was creating an out of control immune cascade (interleukins etc.), which was stimulating my LHPA axis to constantly create a situation of high cortisol, which was ultimately having the effect of not allowing my body to shuttle copper into cells and thereby creating an insufficiency of copper-based enzymes.
As my condition worsened, I noticed that VOCs could easily damage my vascular system, whereby whenever I'd go in a public place with perfumes, car fumes, cigarette smoke etc., I would sustain vascular injuries anywhere in my body. Sometimes, if the vascular damage was in my brain, I'd notice stroke-like symptoms, which were so extreme that my heart and lungs would shut down for a few seconds and I could no longer breathe.
I learned from Dr Myhill and Acumen Labs that my SOD activity was very low at 36%, indicating what I already suspected as either an actual or functional copper deficiency.
I believe that many systems in my body that require copper for "cuproenzymes" have virtually shutdown, including lysyl oxidase (to make collagen), cytochrome c oxidase (to make energy in mitochondria), super oxide dismutase (master anti-oxidant) etc. etc.
When I first took this soil-based probiotic, I had the feeling that I'd "died inside" as if my neurotransmitters had shifted to such an extent as a consequence of a badly deranged gut environment.
I was wondering if GcMAF in the form of MAF 314 or MAF 878 could help my gut rid itself of this S. Griseus organism, which may be feeding on all the biounavailable copper I'm harboring or something else, I'm not sure.
My life is virtually impossible to constantly keep feeding myself carbohydrates and avoiding VOCs as if my life depends on it, so either I may just die, or I have to beat what's disturbing my body to such a violent extent.
Does anyone have any advice please, particularly in the case of measuring cytokines and using GcMAF in different forms?
Thanks for your help.
Best,
Scotty
