Gastroenterologist.

[Fuzzyhead]

I haven't been feeling well for a few months and it started with vertigo, headaches, pressure in head etc and i convinced myself I had a brain tumour but my gp didn't think anything was wrong. He reluctantly referred me for a brain ct scan which I have on Friday. I also have nausea, no appetite,diarrhoea,night sweats, depression and anxiety and general malaise. My gp did my bloods and my liver function was high so I worried that I was feeling this way because of my liver. Had further bloods done and a scan of my liver, spleen, gallbladder,kidneys and pancreas and all ok. My gp has now referred me to a gastroenterologist so I am worrying it's my stomach or bowels now.
I am also getting pains in my back, neck and the back of my throat feels lie, I can't breath properly.
I had an endoscopy and sigmoidoscopy a few years ago and all they found was gastritis and said ibs but I have been taking lansporazole since.
Anyone been to a gastroenterologist?

 

[Sushi]

Fuzzyhead

I think many of us have been to gastrorenterologists. Unfortunately, most of them don't know what to look for in patients with ME/CFS and miss things that are going on in the gut. So it is hard to suggest good doctors to see for gut problems. Often an ME/CFS specialist will know how to run and interpret gut tests that mean nothing to the gastros.

There are a couple of good DNA-based stool tests (Metametrix and Redlabs) but few doctors know how to interpret them. The labs themselves will often refer you to a doctor in your area who is familiar with working with these tests.

Best,
Sushi

 

[maryb]

Hi fuzzyhead I have all those symptoms you describe. I too was referred to a g/enterologist, had the lot colonoscopy/endoscopy/barium enema etc. Found nothing despite lots of GI symptoms, prescribed PPI's, later found through a test on Dr Myhill's site I actually had extremely low stomach acid, I hadn't been taking the PPI's anyway they made me feel ill, no wonder.
If nothing else being tested will give you peace of mind but then something else starts......
Think its all part of the bigger ME picture and feel like I'm on a merry go round picking up new symptoms, dropping some, its horrible.

 

[Fuzzyhead]

Yes I know what you mean Maryb about new symptoms popping up.
Started off 4 months ago with vertigo, headaches, pressure and having a brain ct scan on Friday and then nausea, fatigue, diarrhoea,night sweats, no appetite and depression. I haven't had fatigue like this ever in my whole of 12 years of m.e.

 

[maryb]

I've just had the results of an MRI scan. Now the neurologist said he could tell I was in pain because the scan showed movement - he said I was literally trembling, however nothing showed on the scan, which was fantastic news. But I was in horrendous pain lying in the scanner for 1 and 1/2 hrs. The radiologist accused me of moving when I hadn't moved a muscle, it was happening internally, the dolt. He shouted is it unbearable? what do you say carry on you @&*se.
What an illness when you can be in so much pain and all thats offered - physio and acupuncture - the neuro's hypothesis, a spasm? but wouldn't that have shown up, I forgot to ask, in and out in 20mins no answers no better. oh £150 lighter in pocket though.