Free Webinar With Dr. Peter Rowe, Director of Chronic Fatigue Clinic

[Rowena Ilagan]

Solve ME/CFS Initiative (SMCI)'s first webinar of the year, "A Clinical Approach to ME/CFS in Adolescents and Young Adults," will be held with Peter Rowe, M.D. next Thursday, March 17, 2017. To register for the free webinar, go here: https://attendee.gotowebinar.com/register/7209349689868350723

 

[AndyPR]

Bump as this is tomorrow.

 

[AndyPR]

Recording now available on YouTube.

 

[Rowena Ilagan]

Thank you for sharing AndyPR! I was just about to post the link to the You Tube video.

 

[Seven7]

How to test for Hyper mobility:
http://ehlers-danlos.com/assessing-joint-hypermobility/

 

[slysaint]

started listening; sounded good, re PEM (showed change in gene expression slide from L.Batemans talk);
but then he said CFS was common and this slide came up. I haven't listened to the rest.
Not sure what to think.
ETA: Ok he has clarified a bit and even mentioned the PACE trial briefly. There are 'flavours' of Ray Perrins theories; actually quite a mixture of different theories which does show a more 'open' approach to another CFS paediactrician we know of.

 

[Murph]

Some slides from the presentation that I found interesting / hadn't seen before.

 

[Jesse2233]

wow fascinating stuff

When I first got sick I emailed every ME/CFS researcher I could find, and Dr Rowe was the only one who responded.

Wonder if the IVIG and OI numbers are just post mono

And what the effects of combined IVIG and OI treatment would be in terms of QoL