@
SDSue
No flushing, reduced brain inflammation! Then I ate edamame (a known allergen) and within 20 minutes, I had my reaction, this time with hives. Yikes. Still itching this morning.
Good news: Looks like it's allergies and I don't have to wait 72 hours to find causes.
Bad news: Looks like it's allergies and they are progressing. I've a history of anaphylaxis - the itching inside my ears and hives are familiar pre-anaphylaxis symptoms, so I need to get serious. MIght be time to update the epi-pen.
Is this typical w/ broken immune systems? Probably doesn't help things. But likely underlying genetic issues.
You refer to update the epi-pen. So you clearly have a history. And yes, there's likely a Masto component. But it's something you can deal with. Do you know that histamines accumulate, when your histamine 'bucket' is full, it overflows into reaction.
I've been on
GAPS diet 2.5 years. It's said that Paleo is for well people, GAPS for unwell people. I've come to love it's simplicity and gut-healing through elimination of all starches. Altho the simplicity for me comes especially because I've had to eliminate most things! You, like me, would have to make significant modifications for histamines. I only uncovered my histamine and sulfur intolerances on the GAPS diet. I had persistent and increasing rosacea-like eczema on my face. I had to eliminate all histaminic foods prior to a urine histamine test (which showed nothing significant!) My face cleared approx 50% overnight. Then I removed sulfur, and the remaining cleared, just as quickly.
This is now nearly 2 years ago, I've been on a learning curve about histamines and then about mast cells ever since. One of the things I now understand is that it's not only our foods that create histamines, but some of our natural physiological processes. In my recent detox protocol, I had to compensate for both histamines and sulfur (ammonia) by-products.
The anti-histamines that I've found brilliant: rutin, mangosteen, royal jelly. I assume they must act differently, as I self-test for using all 3. I've found that rutin can halt a histamine outbreak within minutes. I used to use quercetin, the first one I learned of from Amy Yasko. But mangosteen has replaced it. Quercetin is hi-sulfur and I'm happy to have an alternative.
I've been collecting histamine resources. There was a commenter on Healthypixels (link below) who shared his collected notes in an online notebook format, which is due to expire soon. So yesterday I went in and collected a bunch more, which I've barely scanned. I'm linking some things that might be useful to you.
In my understanding, which is limited on this point, you can have histamine issues w/o masto , but if you've already gone near anaphylaxis, I suspect masto involvement. Dr. Theoharides notes that the only definitive test is bone marrow, and I certainly won't go there. You can treat these things by symptoms, without testing.
Dr. Theoharides is the expert on mast cells. I'm linking 3 of his vids. the 3rd is a short interview about a product he designed, Neuroprotek. He's a pharmacologist, I'll link his main website, w/ many research papers. Once I'd done all that I could w/ my methylation pathway and was still dissatisfied w/ the amount of non-stop inner chatter i was experiencing, I decided to try his formulation. I felt different w/in hours, and was able to stop a number of my other supplements immediately (including hypothalamus and adrenal glandulars). Brilliant!
Lowhistaminechef has some great info, including interviews w/ Dr. Janice Cottrell (?) re histamines, and anti-histamine drugs. Basically, H1/2 blocker meds do not work prophylactically. Don't bother! For me, all pharmaceuticals push histamine responses. She's also very encouraging, and has created a bunch of low-hist cookbooks.
I've not spent any time on peelingbacktheonionlayers, but there are recipes there, too.
I'm posting a couple different
food lists, one created by, or at least posted by Critterina here at pr. the other is a very user-friendly one I found when I was reviewing the notes yesterday. I've included a 3 minute self-testing vid because I think this is an essential tool for progressing in self-treatment. I treat by symptoms, ask my body re supp doses. It works.
OK, I think that's enough for today. Please don't feel overwhelmed. This will change your life. If you're working on your methylation pathways, these 2 areas go hand in hand, will both improve. I'm finally histamine-outbreak free. For 10 years or more I was always on the verge of a new outbreak somewhere. And only this week, when I went into a histamine overload, did I understand that waking in fright from bad dreams was histamine induced. I'd noticed that I was no longer doing this for some months, when it just happened. No longer a problem. cheers, ahmo
http://thelowhistaminechef.com/wondering-why-you-react-to-everything-you-eat/
Video talk, incl. supps for histamine
http://thelowhistaminechef.com/dr-janice-joneja-histamine-intolerance-interview-pt2/
http://thelowhistaminechef.com/these-probiotic-strains-lower-histamine-rather-than-raising-it/
The Many Faces of Histamine Intolerance
http://healthypixels.com/?p=1044
http://peelingbacktheonionlayers.com/could-histamine-be-sabotaging-your-digestive-health/
‘Brain Allergy’ and ASD - T. Theoharides, MD, PhD https://www.youtube.com/watch?feature=player_detailpage&v=9QbZp3WcC1Q
Mastocytosis with Theoharis C. Theoharides, MS, PhD, MD, FAA http://www.youtube.com/watch?feature=player_detailpage&v=CplxXGpFeKQ
Neuroprotek http://www.youtube.com/watch?feature=player_detailpage&v=pNQsK9PQL3c
http://mastcellmaster.com/publications.php/ Theoharides website
http://food-intolerance-network.com...ine-intolerance-hit-tolerated-foods-list.html
forums.phoenixrising.me/index.php?attachments/allowed-restricted-foods-pdf.6414/
Self-testing http://www.youtube.com/watch?feature=player_detailpage&v=Ex59wHLk3Q0