littlebird6180
Senior Member
- Messages
- 119
First, I'm not an active contributor here so sorry to only post when I need answers--but I have two little kids, work full time and am just so sick. It's not for lack of caring or being selfish. Not trying to make excuses or imply my life is any more hectic than anyone elses, but I just don't know how to juggle more than I have right now.
I feel like I'm ready to wave the white flag and admit defeat. I feel like all I'm doing is bleeding money, going to multiple specialists, taking buckets of supplements and LDN, having so many medical tests and I still feel exactly as awful as always. I'm so tired of doctors right now. I have an appt with Dr Vincent in Alaska in April but feel more fear than hope about LDI. And my family wants me to go to the Mayo Clinic in Scottsdale but that would be a fortune ($$ I don't have) and I feel like I'll just spend money to hear conservative doctors tell me that I'm just tired from my kids or work. I had 3 days where I felt amazing and thought it was the LDN but haven't been able to recreate it.
I'm seeing some of the top specialists so you'd think I'd feel even an iota of improvement but I don't. They just want more blood, more imaging, more drugs to experiment with which means more time, more energy, more money, more side effects.
Does anyone here think the Mayo is worth it? I'm definitely going to keep my appointment with Dr Vincent but the results seem to be hit or miss.
I feel terrified that I'm going to die young and not see my children grow up. It feels like my body is just gradually shutting down on me. But no doctors seem to fully understand or be able to do anything to help me. So the onus is on the patient (who is already fully depleted of energy) to fight for their health. Is there a point though where you have to say "hey, i've tried it all. this is just the hand i've been dealt and maybe there is no solution"? I don't want to bankrupt my family if there's no cure or I'm only going to marginally improve my quality of life.
I feel like I'm ready to wave the white flag and admit defeat. I feel like all I'm doing is bleeding money, going to multiple specialists, taking buckets of supplements and LDN, having so many medical tests and I still feel exactly as awful as always. I'm so tired of doctors right now. I have an appt with Dr Vincent in Alaska in April but feel more fear than hope about LDI. And my family wants me to go to the Mayo Clinic in Scottsdale but that would be a fortune ($$ I don't have) and I feel like I'll just spend money to hear conservative doctors tell me that I'm just tired from my kids or work. I had 3 days where I felt amazing and thought it was the LDN but haven't been able to recreate it.
I'm seeing some of the top specialists so you'd think I'd feel even an iota of improvement but I don't. They just want more blood, more imaging, more drugs to experiment with which means more time, more energy, more money, more side effects.
Does anyone here think the Mayo is worth it? I'm definitely going to keep my appointment with Dr Vincent but the results seem to be hit or miss.
I feel terrified that I'm going to die young and not see my children grow up. It feels like my body is just gradually shutting down on me. But no doctors seem to fully understand or be able to do anything to help me. So the onus is on the patient (who is already fully depleted of energy) to fight for their health. Is there a point though where you have to say "hey, i've tried it all. this is just the hand i've been dealt and maybe there is no solution"? I don't want to bankrupt my family if there's no cure or I'm only going to marginally improve my quality of life.