- Messages
- 6
- Location
- East Kootenays, BC, Canada
Hello everyone,
I may have posted here many years ago, but have become so frustrated after years of diligent investigating that I just learned to live with my symptoms. However, my health has taken a turn for the worse. I started seeing a CFS specialist at last, and while she said I should treat my symptom set as CFS, she couldn't give me an official diagnosis because I didn't exactly meet every criterion for a diagnosis. Anyway, her testing did provide me with a few clues as to what is wrong. She told me I should stay away from gluten, dairy, and fructose (which cause IBS and lead to other problems). This has helped somewhat. She also told me that my blood tests showed that my body was producing antibodies (I think) for mononucleosis, which I had when I when I was 17 (I am 40 now!). Anyway, I was diagnosed with Type 1 Diabetes (adult onset) a few years ago, too. But my main problem is this: I catch every sickness possible it seems, and it takes me weeks - sometimes months - to recover. And I suffer sometimes severe flu-like symptoms following even the lightest of physical exercise. Right now I have had laryngitis for a month (which makes my job as a substitute teacher pretty much impossible) and feel much like I did when I first developed my CFS like symptoms (which followed a bout of strep throat, and resulted in me having zero exercise tolerance, among other things). I am on my second round of antibiotics and feel no better - perhaps worse - than I did a month ago! It seems I have no immune system left.
So I guess I am just wondering if anyone out there knows anything about chronic mono / EBV and if and how it can be treated, or how it relates to CFS? Or if anyone can help me connect the dots based on what little I've explained here? Any insights, leads, suggestions, or encouragements appreciated.
Thanks in advance,
Steve
I may have posted here many years ago, but have become so frustrated after years of diligent investigating that I just learned to live with my symptoms. However, my health has taken a turn for the worse. I started seeing a CFS specialist at last, and while she said I should treat my symptom set as CFS, she couldn't give me an official diagnosis because I didn't exactly meet every criterion for a diagnosis. Anyway, her testing did provide me with a few clues as to what is wrong. She told me I should stay away from gluten, dairy, and fructose (which cause IBS and lead to other problems). This has helped somewhat. She also told me that my blood tests showed that my body was producing antibodies (I think) for mononucleosis, which I had when I when I was 17 (I am 40 now!). Anyway, I was diagnosed with Type 1 Diabetes (adult onset) a few years ago, too. But my main problem is this: I catch every sickness possible it seems, and it takes me weeks - sometimes months - to recover. And I suffer sometimes severe flu-like symptoms following even the lightest of physical exercise. Right now I have had laryngitis for a month (which makes my job as a substitute teacher pretty much impossible) and feel much like I did when I first developed my CFS like symptoms (which followed a bout of strep throat, and resulted in me having zero exercise tolerance, among other things). I am on my second round of antibiotics and feel no better - perhaps worse - than I did a month ago! It seems I have no immune system left.
So I guess I am just wondering if anyone out there knows anything about chronic mono / EBV and if and how it can be treated, or how it relates to CFS? Or if anyone can help me connect the dots based on what little I've explained here? Any insights, leads, suggestions, or encouragements appreciated.
Thanks in advance,
Steve