Guido den Broeder
Senior Member
- Messages
- 278
- Location
- Rotterdam, The Netherlands
A conference on ME will be held by the ME Vereniging Nederland, the patient association for ME in The Netherlands, on May 8, 2013 in the city of Haarlem.
In the morning, a selected group of specialists is going to discuss the development of a multidisciplinary guideline for ME. In the afternoon, there will be lectures by Johannes Peperkamp (neurologist from Belgium), Frans Visser (cardiologist) and Theo Wijlhuizen (internist).
Source: ME Vereniging Nederland, February 25
The position of ME patients in The Netherlands has grown particularly awkward after the recent publication of a government-initiated guideline on CFS, in which it is claimed claim that:
- ME is synonymous to CFS;
- CBT/GET is the only remedy;
- patients should not be medically examined beyond basic bloodwork;
- viral infections should not be treated.
ME specialists as those mentioned above were not consulted, nor was the patient association. The ME Vereniging Nederland has filed a complaint with the Health Care Inspectorate.
In the morning, a selected group of specialists is going to discuss the development of a multidisciplinary guideline for ME. In the afternoon, there will be lectures by Johannes Peperkamp (neurologist from Belgium), Frans Visser (cardiologist) and Theo Wijlhuizen (internist).
Source: ME Vereniging Nederland, February 25
The position of ME patients in The Netherlands has grown particularly awkward after the recent publication of a government-initiated guideline on CFS, in which it is claimed claim that:
- ME is synonymous to CFS;
- CBT/GET is the only remedy;
- patients should not be medically examined beyond basic bloodwork;
- viral infections should not be treated.
ME specialists as those mentioned above were not consulted, nor was the patient association. The ME Vereniging Nederland has filed a complaint with the Health Care Inspectorate.