That's feels serendipitous that this should pop up again. I'm starting IVIG soon and was searching for IVIG in ME and came across this guy a few days ago and now here he is again.
I note that he advocates a pure diet, good sleep hygiene and:
Strict control of exercise and activities.
No heavy lifting (anything using upper extremities – such as house cleaning) is prohibited.
Walking is allowed if patient improves.
If the patient feels any post-exertional malaise, then reduce the exercise.
sorry the above should be in quotes, but my quotes button has gone walk about.
I also like their definition of rest:
How to have rest
Rest (like monks meditate),
No loud music and no reading books.
In acute stages, absolutely no exercise.
If anyone does exercise they may develop cardiomyopathy or severe cardiac arrhythmia - even death.
They only give 1G a week, whereas I will be having 10g one day a month - I think even 10g is still not a lot. I think for CVID etc they give about 30g.