PhoenixBurger
Senior Member
- Messages
- 202
EDIT: This post has been edited significantly from the original, to convey my thoughts more accurately.
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Had yet another pointless office visit with another doctor who is one of the higher ups in his field of study, and was (according to my primary care physician) actually trained by Dr. Nancy Klimas.
I took some very toxic medications (AZT specifically, for prevention of HIV after exposure) back in February. These medications are known to cause damage to DNA in healthy cells. Known to cause damage to mitochondria in healthy cells. Known to cause myopathy in muscles. Known to cause lipid dysfunctions in healthy people. Yet for some reason the HIV doctors out there are hellbent on protecting this drug, or at the very least discouraging anyone who has long term side effects, from ever discussing the matter.
Before February? I was a perfectly healthy person for many years. Since February? Neuromuscular problems, Chronic Fatigue, Fibromyalgia symptoms, Sensory disorders, Myopathy, Cramping, Fasciculations, etc. The change in my life is centered around the event of taking AZT and 3 other highly toxic medications for a full 30 days, yet HIV physicians refuse to discuss the matter. This experience was no different.
After waiting an entire month to see this doctor, he literally spent 30 minutes dismissing every symptom I had, outright, without a single shred of investigation. He told me to "Get it out of my head" that the AZT or other HIV meds had any relevance to this. He disregarded all my comments about having had some personal success treating this as a Mitochondrial dysfunction, by a certain supplement regimen (actually published in a journal) that was given to those taking AZT long term. He stated that CFS and Fibro were most likely depression related, and self inflicted syndromes. I told him I had an appointment with Klimas / Ray coming soon, and his response was: "Want my opinion? Don't bother going". He said they are spending a lot of time trying to (insert sarcastic tone) "find some viral or bacterial cause, and they're not finding anything".
Normally I would respect the confidentiality of the meeting but I am at my wits end with the utter joke that is the medical community. I don't know if there's some strange illuminati BS going on with these HIV medications, in that doctors know something the public doesn't, and they are trying to hide it? But I am tired of wasting my time, and my health, and more importantly - my intelligence - on utterly retarded conversations with people who are supposed to be highly intelligent and trained in their expertise.
The astounding ignorance in relation to *any* new ideas or concepts. The willingness to write medical prescriptions but scoff at nutritional solutions. The higher up the doctor is, the less able to think outside the box they become.
I told him i'd spoken firsthand with countless Health Care workers who reported ongoing problems after a 30 day course of HIV antiretroviral meds. People who had confirmed diagnoses of CIDP months later. Confirmed diagnoses of GBS. Confirmed diagnoses of Sarcoidosis. Chronic Fatigue. Myopathy. All centered around the ingestion of these toxic, poisonous medications used to treat HIV. He had the audacity to tell me it was all "Coincidence". All of their symptoms - a coincidence. "There are a lot of coincidences in medicine!" he said .... are you kidding me? This guy has a degree?
I asked him - "You're an infectious disease doctor. Doesn't that encompass thousands of possible pathogens? Yet you haven't suggested a single possible cause to my symptoms. And you don't even want to check." He said he would go over my blood work and get back with me. He has never called me back.
Doctors are an utter waste of my time, my intelligence, and my health. People on this forum know more than any physician I have ever met in my entire life. Klimas and Ray may be the one exception to that. And even then, I am not so sure.
The internet is a new age of information sharing that is going to bury these physicians and their arrogance, and ignorance. And I am going to do my best to be a part of that movement. Sure there is a lot of bad information out there. But there is also good information, and highly intelligent individuals with HIGHER IQ's than many of these doctors, who now have access to all the studies and research - as well as thousands of others firsthand experience on communities like these. This is going to be the downfall of ignorance in medicine. Its already happening and I hope it continues.
The only contribution this brilliant doctor had to my unexplained symtpoms was this:
Doctor: "What do you do for work again?
Me: "I make health web sites for people suffering from Medical Conditions online"
Doctor: "Ahhhh .... THERES the problem!!!!" ....
Implication of course being that I spend too much time online reading about health issues, therefore I am working myself up into a symptomatic frenzy. Because apparently I'd rather be doing that, than out living my life. The insulting aspect of this comment was bewildering to me. But I kept my polite smile and laughed at his stupidity.
When I left his office, I told him: "So you basically have no idea whats going on with me. I'm convinced at this point that medical industry is still in the dark ages". He chuckled uncomfortably. Probably not sure if I was insulting him and his profession, or just expressing exhaustion with my situation. It was both.
End of office visit. After a month of waiting. Waste of my time.
-----------------------
Had yet another pointless office visit with another doctor who is one of the higher ups in his field of study, and was (according to my primary care physician) actually trained by Dr. Nancy Klimas.
I took some very toxic medications (AZT specifically, for prevention of HIV after exposure) back in February. These medications are known to cause damage to DNA in healthy cells. Known to cause damage to mitochondria in healthy cells. Known to cause myopathy in muscles. Known to cause lipid dysfunctions in healthy people. Yet for some reason the HIV doctors out there are hellbent on protecting this drug, or at the very least discouraging anyone who has long term side effects, from ever discussing the matter.
Before February? I was a perfectly healthy person for many years. Since February? Neuromuscular problems, Chronic Fatigue, Fibromyalgia symptoms, Sensory disorders, Myopathy, Cramping, Fasciculations, etc. The change in my life is centered around the event of taking AZT and 3 other highly toxic medications for a full 30 days, yet HIV physicians refuse to discuss the matter. This experience was no different.
After waiting an entire month to see this doctor, he literally spent 30 minutes dismissing every symptom I had, outright, without a single shred of investigation. He told me to "Get it out of my head" that the AZT or other HIV meds had any relevance to this. He disregarded all my comments about having had some personal success treating this as a Mitochondrial dysfunction, by a certain supplement regimen (actually published in a journal) that was given to those taking AZT long term. He stated that CFS and Fibro were most likely depression related, and self inflicted syndromes. I told him I had an appointment with Klimas / Ray coming soon, and his response was: "Want my opinion? Don't bother going". He said they are spending a lot of time trying to (insert sarcastic tone) "find some viral or bacterial cause, and they're not finding anything".
Normally I would respect the confidentiality of the meeting but I am at my wits end with the utter joke that is the medical community. I don't know if there's some strange illuminati BS going on with these HIV medications, in that doctors know something the public doesn't, and they are trying to hide it? But I am tired of wasting my time, and my health, and more importantly - my intelligence - on utterly retarded conversations with people who are supposed to be highly intelligent and trained in their expertise.
The astounding ignorance in relation to *any* new ideas or concepts. The willingness to write medical prescriptions but scoff at nutritional solutions. The higher up the doctor is, the less able to think outside the box they become.
I told him i'd spoken firsthand with countless Health Care workers who reported ongoing problems after a 30 day course of HIV antiretroviral meds. People who had confirmed diagnoses of CIDP months later. Confirmed diagnoses of GBS. Confirmed diagnoses of Sarcoidosis. Chronic Fatigue. Myopathy. All centered around the ingestion of these toxic, poisonous medications used to treat HIV. He had the audacity to tell me it was all "Coincidence". All of their symptoms - a coincidence. "There are a lot of coincidences in medicine!" he said .... are you kidding me? This guy has a degree?
I asked him - "You're an infectious disease doctor. Doesn't that encompass thousands of possible pathogens? Yet you haven't suggested a single possible cause to my symptoms. And you don't even want to check." He said he would go over my blood work and get back with me. He has never called me back.
Doctors are an utter waste of my time, my intelligence, and my health. People on this forum know more than any physician I have ever met in my entire life. Klimas and Ray may be the one exception to that. And even then, I am not so sure.
The internet is a new age of information sharing that is going to bury these physicians and their arrogance, and ignorance. And I am going to do my best to be a part of that movement. Sure there is a lot of bad information out there. But there is also good information, and highly intelligent individuals with HIGHER IQ's than many of these doctors, who now have access to all the studies and research - as well as thousands of others firsthand experience on communities like these. This is going to be the downfall of ignorance in medicine. Its already happening and I hope it continues.
The only contribution this brilliant doctor had to my unexplained symtpoms was this:
Doctor: "What do you do for work again?
Me: "I make health web sites for people suffering from Medical Conditions online"
Doctor: "Ahhhh .... THERES the problem!!!!" ....
Implication of course being that I spend too much time online reading about health issues, therefore I am working myself up into a symptomatic frenzy. Because apparently I'd rather be doing that, than out living my life. The insulting aspect of this comment was bewildering to me. But I kept my polite smile and laughed at his stupidity.
When I left his office, I told him: "So you basically have no idea whats going on with me. I'm convinced at this point that medical industry is still in the dark ages". He chuckled uncomfortably. Probably not sure if I was insulting him and his profession, or just expressing exhaustion with my situation. It was both.
End of office visit. After a month of waiting. Waste of my time.
