Dr Enlander vs Dr Frid

[LivingwithFibro]

One of those versus threads again

I'm curious to know, if you've been a patient of Dr Enlander or Dr Elena Frid and how they approach CFS. I'm not in the states and considering consulting with either over the phone - in conjunction with my local doctor.

 

[MEPatient345]

I was a patient of dr. Frid. She doesn't treat ME/CFS, or at least, did nothing for me. She leans towards the opinion that it's always an infection, i.e. Lyme disease, which I think is a much too narrow and simplistic approach. I don't think neurology as a field currently has much in way of solutions for us until research progresses further, so not sure it's worthwhile.

 

[Daffodil]

One of those versus threads again

I'm curious to know, if you've been a patient of Dr Enlander or Dr Elena Frid and how they approach CFS. I'm not in the states and considering consulting with either over the phone - in conjunction with my local doctor.

the doctor who is furthest along in researching this disease is kenny demeirleir. i wouldnt see anyone else.

 

[LivingwithFibro]

the doctor who is furthest along in researching this disease is kenny demeirleir. i wouldnt see anyone else.

I am not lucky enough to have that choice yet. I need to get several tests done.

 

[Daffodil]

I am not lucky enough to have that choice yet. I need to get several tests done.

do you mean you need someone who takes insurance?

 

[Jesse2233]

I was a patient of dr. Frid. She doesn't treat ME/CFS, or at least, did nothing for me. She leans towards the opinion that it's always an infection, i.e. Lyme disease, which I think is a much too narrow and simplistic approach. I don't think neurology as a field currently has much in way of solutions for us until research progresses further, so not sure it's worthwhile.

Did she offer plasmapheresis? I've heard of her using it in conjunction with IVIG

 

[MEPatient345]

Did she offer plasmapheresis? I've heard of her using it in conjunction with IVIG

Not to me Jesse.. she didn't offer me anything. But it was about 3 years ago, so perhaps she does that now.

 

[LivingwithFibro]

do you mean you need someone who takes insurance?

Nope, I'm in a country in Asia where CFS is unknown so my best bet is to find a doctor who can work with my local doctor. I cannot travel either due to health reasons plus getting a medical visa based on CFS is hard so these two doctors are my best bet....

 

[Daffodil]

Nope, I'm in a country in Asia where CFS is unknown so my best bet is to find a doctor who can work with my local doctor. I cannot travel either due to health reasons plus getting a medical visa based on CFS is hard so these two doctors are my best bet....

but do these 2 doctors do that without seeing you? I thought that was not allowed..

 

[fireflymd]

the doctor who is furthest along in researching this disease is kenny demeirleir. i wouldnt see anyone else.

Daffodil, do you have contact information for Dr. DeMeirleir?

 

[Daffodil]

Daffodil, do you have contact information for Dr. DeMeirleir?

sure. if you want an appointment in Belgium, I would call them http://www.himmunitas.org/pages/english/index_en.php?page=home_en
if you want an appointment in Reno, you must email:
nossavdv@ehmb.be

 

[LivingwithFibro]

but do these 2 doctors do that without seeing you? I thought that was not allowed..

They cannot prescribe anything or treat me, they'll only collaborate and guide my physician in the right direction.

 

[Daffodil]

oh thats great!

 

[Mollymolly]

I just started dr Enlander protocol like a week ago

 

[LivingwithFibro]

I just started dr Enlander protocol like a week ago

Oh, what exactly does it entail?

 

[Seven7]

I thought Dr. Enlannder was retired, is that not the case?

 

[Mollymolly]

No semi retirement