livinglighter
Senior Member
- Messages
- 379
At best NICE has stopped doing harm with their treatments plan and that is it. That is progress but its also the bare minimum and it should have happened years ago.
When I say grateful, I understand the effort the doctors and everyone involved had to apply just to get CBT and GET removed. I assume the doctors wanting to keep it were producing all sorts of NHS clinical based research "evidence" to argue it's effectiveness. So while this is the bare minimum. I am thankful that no one else will be talked into this. All the kids that suffer at the hands of the therapists and parents threatened with having their kids removed, etc. It provides some light in the tunnel for those who find themselves extremely vulnerable.
If anyone wants to form plans for creating awareness in an impactful manner, I am happy to participate. The draft guidelines are a newsworthy event alongside LongCovid similarities . So perhaps pwME sharing their voice will add to the conversation about much more needing to be done.