Dr.Patient
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Please share your thoughts and research, thanks everyone!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Yes, parts of the US are experiencing an outbreak of enterovirus D68.There is another issue here. There are many pathogens including enteroviruses that can manifest as a flu-like infection. Flu shots will not protect against them. I think those other infections are much more likely to initiate ME or CFS than regular flu.
That has a few of us worried. We might see the impact next year. I hope not, even though it would be good for advocacy ... yet more sick people is not good.Yes, parts of the US are experiencing an outbreak of enterovirus D68.
Same here.I have been getting flu shots for the last 3 years that I had been sick. Mine started with not getting a flu shot, and thus getting the flu itself. The risks of getting the flu infection on top of what I already have, is much more dangerous than getting a flu shot.
Was that a killed or live flu shot?I'd avoid the flu vaccine (or any vaccine for that matter) like the plague. I'm pretty certain the flu shot triggered my ME almost 3 years ago. It's true that they are harmless for the vast majority of the population but then again so are peanuts. But when they give vaccines to individuals like me with a history of IBS (and thus in my opinion an already wonky immune system), the results can be disastrous. True, it could have been the next cold that did me in or whatever but I just have this hunch...and so does my ME doctor who has seen it all too many times
Do what you feel is right though. Caveat emptor.
I have also thought about getting 2 flu shots every season, one every 3 months...Same here.
I just learned that a flu shot is only effective for 60-90 days, so this winter I will try getting shots every 60 days.
I get a reaction to the shots -- intense confusion and inflammation flare. Last time (first shot this year) I also had some loss of coordination. But the reaction only lasted about 8 hours.
Does anyone here know what that might be about?
I have made it a point not to eat anything that has not been heated up, to avoid getting any gastro viruses.There is another issue here. There are many pathogens including enteroviruses that can manifest as a flu-like infection. Flu shots will not protect against them. I think those other infections are much more likely to initiate ME or CFS than regular flu.
Pretty sure it was the killed kind. I thought all flu vaccines are the non-live type?Was that a killed or live flu shot?