ChrisD
Senior Member
- Messages
- 493
- Location
- East Sussex
Daridorexant - I've been on a low dose for 4 months and it's been the best sleep med I've had in terms of no side effects and a natural feeling sleep HOWEVER my GP stopped my NHS (UK) prescription from private script due to apparent new rules. You can only have it for 3 months, but I've only actually had one month but spread across 4...
I ran out while they are working out if they can prescribe me the other 2 months but I'm reconsidering if I will stay on it because I've rebounded pretty badly the last 5 nights. I was expecting this new sleep pattern to continue but I've been worse than before it, even with melatonin instead (which I was taking before).
So even though it seems great short term, I'm not sure this is the way long term. And now I have to decide whether to go back on, to go back to nortrip. To reset sleep cycle, or to go with naturals. Any advice welcome.
It seems that maybe the Orexin pathway masks other stuff going on in M.E. Officially it doesn't cause withdrawal but I feel that may be different with M.E. because there are abnormalities in the pathway.
It's concerning to experience this severe sleep disturbance again as I did when I first got sick, and to just have the rug pulled out from beneath me by the NHS.
Any tips or advice welcome in terms of any OTCs that can help tackle this!
Daridorexant - I've been on a low dose for 4 months and it's been the best sleep med I've had in terms of no side effects and a natural feeling sleep HOWEVER my GP stopped my NHS (UK) prescription from private script due to apparent new rules. You can only have it for 3 months, but I've only actually had one month but spread across 4...
I ran out while they are working out if they can prescribe me the other 2 months but I'm reconsidering if I will stay on it because I've rebounded pretty badly the last 5 nights. I was expecting this new sleep pattern to continue but I've been worse than before it, even with melatonin instead (which I was taking before).
So even though it seems great short term, I'm not sure this is the way long term. And now I have to decide whether to go back on, to go back to nortrip. To reset sleep cycle, or to go with naturals. Any advice welcome.
It seems that maybe the Orexin pathway masks other stuff going on in M.E. Officially it doesn't cause withdrawal but I feel that may be different with M.E. because there are abnormalities in the pathway.
It's concerning to experience this severe sleep disturbance again as I did when I first got sick, and to just have the rug pulled out from beneath me by the NHS.
Any tips or advice welcome in terms of any OTCs that can help tackle this! I've been l looking at which supplements may also target orexin/Hypocretin including theanine and GABA....
I ran out while they are working out if they can prescribe me the other 2 months but I'm reconsidering if I will stay on it because I've rebounded pretty badly the last 5 nights. I was expecting this new sleep pattern to continue but I've been worse than before it, even with melatonin instead (which I was taking before).
So even though it seems great short term, I'm not sure this is the way long term. And now I have to decide whether to go back on, to go back to nortrip. To reset sleep cycle, or to go with naturals. Any advice welcome.
It seems that maybe the Orexin pathway masks other stuff going on in M.E. Officially it doesn't cause withdrawal but I feel that may be different with M.E. because there are abnormalities in the pathway.
It's concerning to experience this severe sleep disturbance again as I did when I first got sick, and to just have the rug pulled out from beneath me by the NHS.
Any tips or advice welcome in terms of any OTCs that can help tackle this!
Daridorexant - I've been on a low dose for 4 months and it's been the best sleep med I've had in terms of no side effects and a natural feeling sleep HOWEVER my GP stopped my NHS (UK) prescription from private script due to apparent new rules. You can only have it for 3 months, but I've only actually had one month but spread across 4...
I ran out while they are working out if they can prescribe me the other 2 months but I'm reconsidering if I will stay on it because I've rebounded pretty badly the last 5 nights. I was expecting this new sleep pattern to continue but I've been worse than before it, even with melatonin instead (which I was taking before).
So even though it seems great short term, I'm not sure this is the way long term. And now I have to decide whether to go back on, to go back to nortrip. To reset sleep cycle, or to go with naturals. Any advice welcome.
It seems that maybe the Orexin pathway masks other stuff going on in M.E. Officially it doesn't cause withdrawal but I feel that may be different with M.E. because there are abnormalities in the pathway.
It's concerning to experience this severe sleep disturbance again as I did when I first got sick, and to just have the rug pulled out from beneath me by the NHS.
Any tips or advice welcome in terms of any OTCs that can help tackle this! I've been l looking at which supplements may also target orexin/Hypocretin including theanine and GABA....
