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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Correct way to take Florinef/fludrocortisone for POTS

lauluce

lauluce

as long as you manage to stay alive, there's hope
Messages
591
Location
argentina
I'm an idiot... five days after starting fludrocortisone I felt energetic for the first time in years so I went metal-detecting, which implies walking long distances an using a PICKAX to dig holes in hard soil... I seem to be having PEM since then. If you ever improve even just a little, don't get too enthusiastic :(
 
Tella

Tella

Senior Member
Messages
397
bombsh3ll said:
Wow that's great news, I'm so pleased for you!

So you are taking 0.1mg daily and it has taken about a week to see an effect?

Are you supplementing with potassium automatically or waiting to see if your levels drop?

I already supplement potassium as I take licorice root, so I will definitely continue to do so when I switch, and get regular blood tests.
Click to expand...
Hey how r u now
 
Tella

Tella

Senior Member
Messages
397
lauluce said:
I'm an idiot... five days after starting fludrocortisone I felt energetic for the first time in years so I went metal-detecting, which implies walking long distances an using a PICKAX to dig holes in hard soil... I seem to be having PEM since then. If you ever improve even just a little, don't get too enthusiastic :(
Click to expand...
Hey how r u now
 
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