CDC ME/CFS Stakeholder Conference Call September 16, 2019

[Gemini]

CDC ME/CFS Stakeholder Conference Call
September 16, 2019
3:00 pm - 4:00 pm Eastern Daylight Time​

Participants can either call in using the following information: ​

Call number: 1-888-989-4409​

Participant Code: 8773805​

or join the meeting using the webinar format by clicking the link, or copying and pasting it into your browser.​

https://adobeconnect.cdc.gov/r4wnwwqqzvs0/​

If you have never attended an Adobe Connect meeting before, it is recommended that you test the connection before the call date:

Test your connection: https://adobeconnect.cdc.gov/common/help/en/support/meeting_test.htm
Get a quick overview: http://www.adobe.com/products/adobeconnect.html

Meeting Agenda​

3:00pm Welcome and SEC Call Overview

3:05pm Updates from CDC – Elizabeth Unger, PhD, MD, Branch Chief, Chronic Viral Diseases Branch

3:15pm “The Biology of ME/CFS: Emerging Models” Anthony L. Komaroff, M.D., Harvard Medical School, Senior Physician, Brigham and Women’s Hospital, Boston, MA

3:45pm Questions from MECFS SEC Call Mailbox for Guest Speaker and CDC

Disclaimer: Although the content of calls is directed to patients, caregivers, health care professionals, and other interested parties, CDC has no control over who participates on the conference call. Therefore please exercise discretion on sensitive content and material, as confidentiality during these calls cannot be guaranteed.

Please note that questions for the Guest Speakers and CDC can be submitted only via email at MECFSSEC@cdc.gov.

 

[Gemini]

bump, call is tomorrow

 

[Gemini]

bump, call is tomorrow

"Thank You!" in advance to Tony Komaroff, speaker, for his excellent JAMA article "Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome," 76,000+ views worldwide since its July publication:

https://forums.phoenixrising.me/thr...chronic-fatigue-syndrome-komaroff-2019.76892/

Questions/comments to him can be sent to:

MECFSSEC@cdc.gov

 

[Gemini]

Questions I submitted via MECFSSEC@cdc.gov.

Questions for Dr. Unger:
1. Last month on the NIH Call you said the" Adult Portion" of MCAM was complete. When will results be released to the public?

2. What is CDC doing to "prevent" ME/CFS? Known to occur after mono, influenza (2015 Norwegian study), and HPV vaccination (2019 IIME Conference), what CDC prevention projects are underway to address triggers? For example, are you investigating what factors might predispose someone to develop ME/CFS after HPV vaccination?

3. Have you briefed Dr. Redfield on the crisis of care and urgent need for research, clinical trials, and increased funding?

Question for Dr. Komaroff:
Thank you for your excellent, widely read article ''Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome," JAMA, 2019. Do you plan additional clear and concise articles and/or talks which educate, raise awareness, and counter bias like this one does?

@medfeb @Emily Taylor