Tella
Senior Member
- Messages
- 397
Hi, I’m seeing a hematologist in a few weeks’ time. I’ve asked to be referred to one as I’ve seen all the other specialists (when I was still figuring out what I had) already. Now that I know I have ME, I wonder if it will be a waste of time? I wanted to see one especially as at first I thought I may have some issue with my blood as I was having unexplained bruises all the time. They’re still there but not so often.
So is there any test I can ask them to perform that might aid my treatment? Or perhaps find any other underlying conditions, like EDS or smth? But seeing there aren’t any treatment for EDS or other conditions associated with ME, is there even any point doing another blood test?
So far, I’ve been checked for a few viruses, nutritional deficiencies, blood clotting issues, other autoimmune blood tests (that aren’t reliable anyway).
Is there any genetic or other test they may do that might help my kids in the future in case they end up having similar conditions to me? (But if they aren’t curable then do we really need to know which genes are whacky or which aren’t?). If yes, then it may be worth attending the apt.
If I can’t think of much value that can come out of this and don’t think it’s worth doing the trip I won’t go as it will take everything out of me just to attend the appointment so it better be worth it. Have u been to one? Please could u help me decide...many thanks
P.S I won’t discuss my ME diagnosis with them, as I don’t want to, nor there’s any point in it.
So is there any test I can ask them to perform that might aid my treatment? Or perhaps find any other underlying conditions, like EDS or smth? But seeing there aren’t any treatment for EDS or other conditions associated with ME, is there even any point doing another blood test?
So far, I’ve been checked for a few viruses, nutritional deficiencies, blood clotting issues, other autoimmune blood tests (that aren’t reliable anyway).
Is there any genetic or other test they may do that might help my kids in the future in case they end up having similar conditions to me? (But if they aren’t curable then do we really need to know which genes are whacky or which aren’t?). If yes, then it may be worth attending the apt.
If I can’t think of much value that can come out of this and don’t think it’s worth doing the trip I won’t go as it will take everything out of me just to attend the appointment so it better be worth it. Have u been to one? Please could u help me decide...many thanks
P.S I won’t discuss my ME diagnosis with them, as I don’t want to, nor there’s any point in it.