I frequently get acute heavy brain fog (a really heavy feeling in the head that makes me almost feel dizzy/disoriented) that can last for 30 minutes or more. I notice that when I take a shower I usually feel better. I often get it when I'm in a hot car. When I walk into a cold building I get so much relief.
Anyone else experience something similar? Any theories on why this could be?
I agree with @
rosie26, that you might want to look into orthostatic intolerance (OI) possibly due to low blood volume. Heat can make blood vessels expand which creates more volume in your vascular system. If you're already low on blood volume, too much volume to fill and not enough blood to fill it causes problems getting enough blood up to the brain. That can cause heavy brain fog, dizziness, and other cognitive/neurological problems.
Many PWME have problems in hot showers and hot weather for this reason. Cool/cold showers might help in some cases.
You might want to be tested for orthostatic intolerance. If you haven't read
this article here at PR about OI, you might want to give it a glance and perhaps try the Simple Test for Orthostatic Intolerance in that article.