Been treated with rapamune/rapamycin? Help the Drs Light collect case studies

[Sasha]

From Cort's very interesting account of the recent OMF symposium at Stanford:

Doctor Alert! – During a break Alan and his wife, Kathleen Light, made a plug for rapamycin, (rapamune) case reports in ME/CFS. Several accounts of ME/CFS patients doing better on Rapamune have been making the rounds. The Light’s dearly want those case studies to get written up in the scientific literature. That’s all they need to provide the foundation they need to get Rapamune studied in ME/CFS

Putting rapamycin in a search here produces a huge number of hits.

@Cort, can patients who've been treated with rapamycin help with this by contacting their doctors and asking them to contact the Lights? Or writing to the Lights and asking them to contact their doctors? If so, you might want to start a new thread with that call to action. (You might want to check with the Lights first! )

I would think that would be a good idea.