And to be absolutely honest, I love Dr Bateman. She has been our personal angel throughout this hell we all know as ME/CFS. If you can get into her clinic, know that you will be treated with respect and kindness. They will do the best they can with whatever your son's circumstances. Dr B is a passionate and skilled clinician/diagnostician. The people who work with her are equally committed to their work.
That being said, I would advise anyone seeking ME/CFS treatment to get on the wait list of any specialist's clinic that is willing to add you. Whoever can see you first is where you start. We had an unusual referral to Bateman Horne because my daughter's primary care nurse practitioner had an adult daughter who was treated by BHC. Living in Europe when my daughter got sick (her initial diagnosis was at the Royal Free Hospital in Hampstead UK), we were quite clueless about who Dr B was in the greater ME/CFS community.
Once we repatriated, Dr B picked up after the initial diagnosis was made. We brought her several years of labs--including some very detailed immunological studies--as well as reports from multiple endocrinologists, immunologists and pediatricians. I think having a large paper trail made it easier for her to accept my daughter as a patient because so many issues had already been ruled out.
. I also liked your post for support and not b/c I liked the news.