we need a website were people can collect patient reports of those kinds so people wake up.
not only cfs/me folks, also the casual stuff like "did break leg after motorcycle crash, doctor assumed pain syndrome, werent treated for 6 month" (that btw happend in similiar fashion to a friend, they scanned the very obvious fractured upper leg, but the feet they didnt, despite him telling of massive pain, told him its kinda psychological without doing scans, after 6 months of complaining they finally did... ofcourse feet were broken too).
a kinda metoo for this.
in germany we have sites were patients can report experiences with doctors, but as soon as it gets kinda negative, they send in their lawyers, forcing the website to take those down. the website will gaslite the patient into saying its a factual claim despite not even being that.
i had that situation, i wrote my experience like this:
"this is my personal experience, i feel that the doctors didnt listen correctly nor did i feel they personal respect privacy. when i left the clinic i felt i was in worse condition as before".
you cannot post that, they will take it down. at least they did for me, and often there are no bad reviews for big doctors and clinics.
if there was a app to report that, i bet they would take that down too. this whole system feels like a big criminal gang where everyone protects his back on cost of the small people.
