Super. Thanks so much. Timing is perfect indeed. There are so many things we CAN do to make life easier while we wait for the holy grail.
That's how I think of this....not the complete answer but part of it...I definitely have less energy, feel more irritable and spacey and have more pain when I eat the wrong foods. ( I was really having trouble with my knees at one point - and they are fine now..Ditto with the night sweats - hardly any night sweats any more. Just think how much energy it takes your body to pump out all that liquid!
Finding a good rotational diet on the internet is something of a challenge...I did post one.
Very timely for me as well.
I have had ME/CFS for years but only got diagnosed with it last summer by Dr. Bested, an ME/CFS specialist in Toronto. I didn't think I had any food allergies but have recently found out I have all sorts of allergies and food intolerances. I'm sure I didn't have these years ago so I guess it is all part of the disease.
The problem I am having now, however, is that I have had food allergy/ intolerance testing done by three different practitioners and each one doesn't believe the testing methodology of the other two. Some of the testing for food allergies (or possibly even all the testing methods?) aren't scientifically proven and/or approved by medical doctors.
The first test I had done, by a Naturopathic doctor, was a blood test, by finger prick, for IgG allergies to food. The only thing that came up positive was for whey.
The second test I had done , a few months later, was by an allergist (MD). He did the scratch testing on my skin. Even though I have never had hay-fever symptoms or any other allergic reactions, I tested positive for many things including, trees, grass, ragweed, mold, corn, oats, barley, tomatoes and nuts! I didn't test positive for whey and he didn't agree with the IgG test done by the naturopath.
The third test, done by another naturopath ( a previous Pharmacist), was a faecal test for anti gliadin IgA. It was positive, showing I had an intolerance to glutin. This doctor also didn't agree with the IgG testing done by the first naturopath and he also wasn't too convinced about the skin scratch tests done by the allergy specialist.
Needless to say, I have no idea what to eat now. When you see three different "experts" and they all believe something different it is very confusing and discouraging. I've been having a lot of GI problems lately and feel that almost ANYTHING I eat causes some symptom or another. I guess I'll have to go the traditional route and do a strict food elimination diet.
Great topic, Cort.
We need an ME/CFS clinical guideline and treatment. For example, if chronic infections and immune dysregulation are successfully treated will the food, chemical and environmental intolerances resolve themselves over time without intervention?
I think food allergies have been left in the lurch somewhat. My guess is that a percentage of people with CFS, autism, RA - are effected by food allergies...As Dantini said - very little research is being done on food allergies in the US unfortunately.
I had no idea he did that....I'm kind of shocked actually...It would be great to get those comments...Many "omit" food allergies from the ME/CFS symptoms list considering it a separate illness which I don't. Agree with you it mostlikely occurs in autism, RA and other conditions and feel it should be studied as an integral part of each illness. This should happen in Translational and Personalized Medicine, hopefully!
By any chance did you hear Ian Lipkin address autism food allergies 3/29 in New York having discovered them and their cause in autistic patients he was testing for infectious agents? Be interesting to post his comments here if you can find them.
I had no idea he (Ian Lipkin) did that....I'm kind of shocked actually...It would be great to get those comments...
By any chance did you hear Ian Lipkin address autism food allergies 3/29 in New York having discovered them and their cause in autistic patients he was testing for infectious agents? Be interesting to post his comments here if you can find them.
This is interesting ... Does he think he found anything different than what the DAN (Defeat Autism NOW ) community or Autism Research group has been saying for decades now ?
Very timely for me as well.
I have had ME/CFS for years .
Very timely for me as well.
I have had ME/CFS for years .