I hadnt, and even if I had I truly doubted it would cause the severe numbness, dizziness and other symptoms that had hit me like a freight train. I was shocked she didnt think it could possibly be due to the anti viral. At that point I chose to not deal with their office again. She knew nothing and was so very condescending.
I did a phone consult with Dr. Dantini about 2 years ago. He is the one who told me Famvir is actually effective for HHV6. I got really sick a couple of weeks after starting the Famvir but also had moved into a new condo. I called Dr Dantini's "patient advocate" who at that time is who all of his CFS/ME people dealt with. You dont deal with his regular office staff. This woman explains CFS and the viral connection as if you are 2 and it is obvious she really knows very little herself other than the basic info she was given. She is very much a a sales person with her learned dialogue. She had NEVER heard of Valcyte and NEVER heard of anyone getting sicker from the anti virals at first.
When I called to ask if getting this sick only a few weeks into the Famvir was "normal" or acceptable, Dr. Dantinis "patient advocate" told me that she had never heard of anyone getting sicker first. I was shocked and explained some different theories on why some people think it happens. She just got very stern and told me IT NEVER HAPPENS. She them told me that maybe I had over done the sweets on Easter.
Eventually I found out it was the new condo making me sick. I currently take the Famvir from a doctor who usually prescribes Valcyte. I didnt get sicker at first this time on Famvir. My HHV6 has gone way down. I am glad I talked to Dr. Dantini originally but I was not happy when I had to deal with his patient advocate. Also, Dr. Dantini is popping up advertising all the time and I started wondering about his credibility. Even this novel that is supposed be from one of his patients I wondered if was something Dantinis office came up with for advertising. I just wish he would do less advertising for his office and actually advocate more for the patients. If it is true that he has the high percentage of results he says he does, why doesnt he attend any of the HHV6 or CFS/ME conferences to get his protocol out??
Anyway, I just was surprised to see him on here because he says he has this really high success rate but I can never find anyone that has been to him besides myself. Id like more doctors to know if Famvir really is working against HHV6 since Valcyte is so toxic. It seems only Dantini has that info????
I did a phone consult with Dr. Dantini about 2 years ago. He is the one who told me Famvir is actually effective for HHV6. I got really sick a couple of weeks after starting the Famvir but also had moved into a new condo. I called Dr Dantini's "patient advocate" who at that time is who all of his CFS/ME people dealt with. You dont deal with his regular office staff. This woman explains CFS and the viral connection as if you are 2 and it is obvious she really knows very little herself other than the basic info she was given. She is very much a a sales person with her learned dialogue. She had NEVER heard of Valcyte and NEVER heard of anyone getting sicker from the anti virals at first.
When I called to ask if getting this sick only a few weeks into the Famvir was "normal" or acceptable, Dr. Dantinis "patient advocate" told me that she had never heard of anyone getting sicker first. I was shocked and explained some different theories on why some people think it happens. She just got very stern and told me IT NEVER HAPPENS. She them told me that maybe I had over done the sweets on Easter.
Eventually I found out it was the new condo making me sick. I currently take the Famvir from a doctor who usually prescribes Valcyte. I didnt get sicker at first this time on Famvir. My HHV6 has gone way down. I am glad I talked to Dr. Dantini originally but I was not happy when I had to deal with his patient advocate. Also, Dr. Dantini is popping up advertising all the time and I started wondering about his credibility. Even this novel that is supposed be from one of his patients I wondered if was something Dantinis office came up with for advertising. I just wish he would do less advertising for his office and actually advocate more for the patients. If it is true that he has the high percentage of results he says he does, why doesnt he attend any of the HHV6 or CFS/ME conferences to get his protocol out??
Anyway, I just was surprised to see him on here because he says he has this really high success rate but I can never find anyone that has been to him besides myself. Id like more doctors to know if Famvir really is working against HHV6 since Valcyte is so toxic. It seems only Dantini has that info????
...In his defense he has managed to develop a treatment plan that's quite similar - at least regarding pathogens - to what Dr. Lerner and Dr. Peterson do. I go get, though, that his protocol sounds much more limited than what Dr. Peterson would do...I agree there. Dr. Dantini wrote a kind of short, easy book - I imagine Dr. Peterson's book would be much thicker
That's a pretty strong statement Questus
ON the the other hand my guess is that food sensitivity is something that these other doctors don't do. The first doctor I saw was big on allergens - I went to her after meeting somebody who'd had a miraculous cure....unfortunately it did not work for me at the time.
It makes me think of all the subsets in these disorders.
By the way the person who wrote the book did not write a book on her 'cure'. She wrote the book and I interviewed her about the book and in doing so I found out how she had been greatly helped.
