Are SEIDs MDs still being harassed by medical boards?

[gbells]

I recall that Dr. Myhill in the UK was ordered by her medical board to stop using antivirals on SEIDs patients a few years ago. What is the current attitude of the US medical boards toward SEIDs specialist MDs who prescribe antivirals and other treatments? Since SEIDs is only "managed" as part of general medical practice with symptom covering treatments then I assume that all a general MD would have to do is state that this is the standard of care they followed to get out of any complaint.

I have had excellent care from a ME/CFS specialist, naturopathic doctors, a mitochondrial specialist, 2 neurologists snd a hematologist, none of whom work for Swedish, PolyClinic, UW, Virginia Mason, Providence, Kaiser, or Overlake.

This disease is complex, and getting proper diagnosis, treatments like IVIG, Valcyte, antibiotics, nutrients, hormones, MCAS meds, POTS meds, and other treatments have brought me from 40% of function 3 years ago to 85% function today.

I filed 2 complaints with Swedish about their bungling ME/CFS care and lying to me and all I got were butt-covering letters from their attorneys.

Medical guideline from a very popular source.

MANAGEMENT OVERVIEW

Many therapies have been tried in patients with chronic fatigue syndrome (CFS), but none are curative. Thus, management should be supportive and focus on treating common symptoms and comorbid conditions, such as sleep disorders, pain, depression and anxiety, memory and concentration difficulties, and dizziness and lightheadedness. (See 'Approach to common symptoms/comorbidities' below.)


When caring for patient with CFS, it is important that the clinician establish a rapport with the patient to be able to provide support and reassurance. Clinicians should:

●Explain to the patient that the severity is variable but can be completely incapacitating, and that the symptoms are valid. Tell the patient that authoritative institutions, such as the Institute of Medicine of the National Academy of Sciences, have concluded that CFS is a real illness; the symptoms are not imaginary or due to malingering [1,2].

●Explain that studies have identified underlying abnormalities in the nervous system, the immune system, and metabolic function in patients with CFS, although their relationship to the symptoms and etiology of the illness is unclear [3].

https://www.uptodate.com/contents/treatment-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome

Here are the US CDC guidelines which UPTODATE referenced:

https://www.cdc.gov/me-cfs/treatment/index.html

So an insurance company would automatically deny any MD in network if they tried to do nonsymptom treatment of CFS as experimental. This is why the MDs only take cash and out of network benefits.

 

[Seven7]

In my case, I was not given antivirals for ME per say but for natural killer cell distinction ( a known separate thing) which vast majority of ME plp have, so if you google low Nk the acepted treatment is antivirals if virus titters are high. Plp get low Nk without ME, and that is the acepted treatment. So insurance are ok if you follow the established protocols and or, the code you get in ICD is natural killer cell dysfunction.
They will not give antivirals that I know of unless you meet the criteria for viral reactivation.

 

[gbells]

Overview of the types of NK cell deficiency.

Chronic CFS patients have impaired NK cell ability.