Anyone here used HIV/AIDS treatment for CFS?

[junkcrap50]

@junkcrap50 you still on Tenofovir Alafenamide?

No. I was on it for only a short time to see if it had any effect. It was quite expensive. I think it was only on it for -6 months, I think. I didn't notice any effect, positive or negative.

On an aside, it's interesting to see that HERVs (human endogenous retroviruses) have been mentioned in some of the Covid & Long Covid research has gone on. Mostly mentioning it as possible reactivation.

 

[Kevy B]

Might be worth mentioning, as I see there's a lot of chat about Truvada. But I saw someone suffering from Long Covid on Twitter saying they getting positive results with truvada.

 

[Kevy B]

I had mNGS Metagenomic sequencing and found HERV-K in my blood. This is new in my this time mNGS results. In 2018. 2019I had 3 times mNGS for diagnostic parasites and fungus but no retrovirus during those results.

I confirm I was infected from a lady by a kiss with her.

View attachment 37652

That's interesting. I contracted in the same way. Now wondering if a HERV could be my villain. How much did the testing cost, if you don't mind me asking?

 

[Dude]

If i remember correctly from a tweet from the UK conference, Dr Klimas suggested a combination of monoclonal RTX and antivirals as a potential treatment for ME/CFS. Does anybody have more info on this?