Abrupt Continuous Weight Loss

[sleepy237]

When I first got sick I weighed around 92kg; was a gradual gain but my steady weight was in better days around 73kg. Around 2011 I started to lose weight and I am still losing weight and its almost spontanous losing i.e scales ( and they are accurate ) read 67 kg five days ago now down to 63.5. It has been documented and I don't know if this is normal feature of cfs? I have talked to at least one member who thought perhaps thyroid ( this checked out ok ) but I do take levothyroxine. Ummm the doctor says if it continued he would start to look for underlying disease process. I take low dose naltrexone and I am thinking could it be pushing my metabolism too much? Or after reading a thread earlier, I guess because of factors I don't eat properly or regularly and I have slight malnutrition. anyway I will go see the doctor but I just wondered how many people related if any? I couldnt get near this weight ( I'm heavy boned ) in my 20's even with diet and exercise so it's not normal. I have read adrenal fatigue can cause abrupt weight loss but so can many other things. anyway I think I have detailed this correctly and I thank you for any replies if you relate.
thanks , sleepy

 

[rosie26]

Hi sleepy 237

I lost a lot of weight at onset and have not been able to get back to my normal weight of 65kg for the last 12 years.

Every time I get up close to the 60kg mark, my ME deteriorates and I lose the weight I have gained. My weight usually hangs around 55kg.

My ME doesn't seem to like me carrying any weight above 60kg. Extra weight triggers ME deterioration for me. x

 

[alex3619]

I hope you can find some answers soon @sleepy237. Take care of yourself.

 

[AndyPandy]

Like Rosie26 I was around 65kg at onset over 2 years ago. Over a short period I went down to 54kg. I'm 56kg now and struggle to keep weight on. I'm 165cm so I'm on the skinny side. My situation is complicated because since 1997 I have been a skinny type 2 diabetic. I am now on metformin as diet alone doesn't work for me anymore and I can no longer exercise. I eat small and often and still need to control carbs carefully even with the metformin. I did get back up to 58kg a few months ago but have lost a couple of kg on an elimination diet. Diabetes and elimination diet aside, I believe that my significant weight loss was due to CFS.

I think getting checked to rule out underlying disease other than CFS is a very good idea. There could be other reasons for such weight loss. I also think that good nutrition is very important with CFS although not always easy to achieve if you are very debilitated and do not have support. I hope you find some answers soon. Thinking of you.

 

[garcia]

In my experience it's very likely to be LDN. I've gotten this effect (weight loss) before from it on multiple occasions. The only way I can describe it is that it was like no matter how much I would eat, the food would pass straight through me. I think the weight-loss is gut / micro-flora mediated, though I don't fully understand it.