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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Article: How Not to Become Invisible

Enid
A small achievement 3 years into ME (fairly speechless at the time with mobility and cognitive difficulties) I had to visit the Gastro Consultant following my Barium Test. As rushed he rushed in and out I dared to ask a question and cutting me short he said "you think too much". With restrained fury I replied "I do have some interest in my own health" The Senior Nurse attending glared at him on my behalf and I must say he left fairly chastened. And I must add useless though polyps were discovered.
 
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