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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Amazing results he's been getting with his patients! Thanks for writing this, Cort.
I struggled to follow this a bit (no brains today) but is the upshot that there's no way of getting a test for any of the viruses in these peculiar manifestations ("permissive", "gene fragments" etc.) to demonstrate that you need treatment for them?
Is he somehow managing to detect these infections anyway to know which drug to use for which virus? Or are anti-virals general in their nature?
Sorry to ask such basic questions, they are no reflection on your powers of explanation! I just have no medical background and easily lose the plot on this stuff.
I'd love to be able to go to my NHS doctor in the UK, show him some data that indicate I need a test, get referred to a virologist, get the right drug... can't do it without some hard published data &/or a clinical summary from Dr Lerner written for doctors, I think. I wish I knew how to get Dr Lerner's treatment outside of his clinic!
wonder why dr. lerner's protocol didnt work for me..i did it 3 yrs!
There are antibody tests for these early gene products - I don't know how hard they are to find but they're definitely available. You might want to contact his foudation for more information.
Along iwth them will be people who responded but in a milder way and those who didn't respond at all. I hope more of Dr. Lerner's patients will comment on how they're doing or did.
I doubt that many people who did great on Dr Lerner's protocol follow this forum - they will be recovered and getting on with their new lives! We are probably a self-selected bunch on Phoenix Rising (i.e. the quite severely ill).
I just wanted to flag up that if we hear from folk who didn't do well on it (and Ladybugmandy clearly gave it a good go) we shouldn't take that as representative of the effectiveness of Dr Lerner's treatment and feel discouraged.