Hi,
I'm wondering if anyone could put there two cents in on this. I was finally diagnosed with cfs/fibro about 7 months ago. We've been making good headway with healing my gut and trying to get to the bottom of these viral flare ups that keep bringing on my fatigue.
I bought a 23 and me test but have not yet sent it in. I believe part of what is going on with me is genetic. You can trace autoimmune diseases down my mother's side of the family affecting almost everyone in different ways.
I went to a geneticist because my sister was diagnosed with elhers danlos. We still didn't have a diagnosis for me at that point. I explained about the familial pattern and he didn't seem to care saying that elhers danlos can't be found genetically. So I got no answer from him..
I'm trying to figure out if I could use the 23 and me to get an idea of what needed to be further investigated and hopefully get some testing covered by a dr., or if I should just try to find a whole genome for myself. The other issue is I have a 3 year old son and I am concerned that he may have the same gene issue I have.
Basically I could use the test for me to try to figure it out or I could use it for him to see what he is susceptible for so hopefully he will never have to suffer from this horrible disease.
I've been thinking for a while and with my brain fog haven't been able to make a good decision. My current specialist doesn't think it will make a difference but I feel like it might.
Any thoughts our experiences with this? Any useful tips and tricks for when you get the results and how to sort them out?
I'm wondering if anyone could put there two cents in on this. I was finally diagnosed with cfs/fibro about 7 months ago. We've been making good headway with healing my gut and trying to get to the bottom of these viral flare ups that keep bringing on my fatigue.
I bought a 23 and me test but have not yet sent it in. I believe part of what is going on with me is genetic. You can trace autoimmune diseases down my mother's side of the family affecting almost everyone in different ways.
I went to a geneticist because my sister was diagnosed with elhers danlos. We still didn't have a diagnosis for me at that point. I explained about the familial pattern and he didn't seem to care saying that elhers danlos can't be found genetically. So I got no answer from him..
I'm trying to figure out if I could use the 23 and me to get an idea of what needed to be further investigated and hopefully get some testing covered by a dr., or if I should just try to find a whole genome for myself. The other issue is I have a 3 year old son and I am concerned that he may have the same gene issue I have.
Basically I could use the test for me to try to figure it out or I could use it for him to see what he is susceptible for so hopefully he will never have to suffer from this horrible disease.
I've been thinking for a while and with my brain fog haven't been able to make a good decision. My current specialist doesn't think it will make a difference but I feel like it might.
Any thoughts our experiences with this? Any useful tips and tricks for when you get the results and how to sort them out?
