Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I think getting as many videotapes on YouTube as possible is one of the more realistic ways for those who are profoundly ill with ME/CFS to go. One of the main reasons there haven't been large, loud protests from ME/CFS sufferers is that they are so sick and stress further depletes energy stores actually making the illness much, much worse. The thought of taking to the streets and forming marches and protests etc is just too much for most of those who are living with this "Hell on Earth" of an illness.
RivkaRivka: Or, like this video trailer from Britain 'Voices from the Shadows' showing the true horror of this devastating illness ME/CFS.
http://www.youtube.com/watch?v=fiuqTx0u-Yw