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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. SWAlexander

    World’s First Tissue Bank Could Solve Mystery of Long COVID Misery

    UC San Francisco is set to launch the world’s first tissue bank with samples donated by patients with long COVID. The move follows research indicating that the virus can continue to linger throughout the body and may hold the key to understanding the cause of the debilitating disorder, leading...
  2. G

    Abnormal hair fibers - Exploring possible link to tick borne illness

    I have been meaning to share this for a while – as a feel it could be of interest and perhaps helpful to a number of people here. First some background. My fiancé and I both became ill around 5 years ago with some mystery illness. Starting with fever, severe fatigue, headaches, swollen joints...
  3. InitialConditions

    Strange mark(s) on skin. Rash? Overlying swollen vein / lymph vessel in neck

    This is a strange one. The photo shows some marks on the left side of my neck. Now this rash - if you can call it that - does not bother me. The reason I post is because the largest mark/spot (about a thrid of the way up the photo) lies directly over what seems to me to be a swollen vein or...