• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.


  1. Cort

    Small Fiber Polyneuropathy (SFPN) Proposed as Cause of Exercise Intolerance In ME/CFS

    Just did a blog on this - it was prompted by two media articles - which described the many different symptoms that SFPN can cause. I was a bit surprised. Oaklander, though, clearly thinks that much of FM is SFPN...
  2. waif

    has anyone tried plaquenil for idiopathic SFPN?

    I can't afford a biopsy yet but I'm not in a rush bc I don't see great tx options... Just curious if anyone's tried it. I've had extreme pain in my upper body and numb hands for for almost 10 years now. "When the cause hasn’t been identified, treatment focuses on managing symptoms...