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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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severe me/cfs

  1. rpapen77

    Has anyone gotten Silver Diamine Fluoride for dental cavities?

    My brother with Severe ME has a bunch of cavities. He hasn't had a dental cleaning, x-rays, or fillings in around 5 years, since he became severely ill, and in that time has not had the energy to keep up with his dental hygiene. He's also on a lot of medications that cause dry mouth. We...
  2. G

    Stomach Decline in Extremely Severe ME/CFS

    Hello. I am a FT caregiver for my daughter, who’s in her early 30s and has suffered from ME/CFS for four years (the past two years severe, and the past 9 months extremely severe). She got sick after a virus in 2019 and has been in a gradual decline since. She’s been housebound since the end of...
  3. Thebirdman333

    Horrific Gut Anxiety Feeling?

    So I had an allergic reaction back in February and then had this awful, god awful, feeling. It was not PEM, but what essentially was happening was I would almost get these like adrenal rushes from my stomach. And it would cause me to feel super hyper, like I would be talking super fast and...
    • Thebirdman333
    • Thread
    • anxiety central nervous system gut-brain axis mast cell activation severe me/cfs sympathetic nervous system
    • Replies: 7
    • Forum: General Symptoms
  4. Pyrrhus

    Healthcare Journal dedicates an entire issue to Severe ME

    The Journal Healthcare has dedicated an entire issue to the topic of severe ME: https://www.mdpi.com/journal/healthcare/special_issues/me_cfs_issue
    • Pyrrhus
    • Thread
    • healthcare journal https://forums.phoenixrising.me/attachments/0cb2912d-235d-47d3-bcea-f59f609508e0-jpeg.42451/ severe me severe me/cfs
    • Replies: 23
    • Forum: Latest ME/CFS Research
  5. Pyrrhus

    Life-Threatening Malnutrition in Very Severe ME/CFS (Baxter, Speight, and Weir, 2021)

    FINALLY, someone has addressed this very important issue in a publication: Life-Threatening Malnutrition in Very Severe ME/CFS (Baxter, Speight, and Weir, 2021) by Helen Baxter, Nigel Speight, and William Weir https://www.mdpi.com/2227-9032/9/4/459/htm Excerpt: (spacing added for readability)...
    • Pyrrhus
    • Thread
    • dysphagia eating gastroparesis https://forums.phoenixrising.me/attachments/0cb2912d-235d-47d3-bcea-f59f609508e0-jpeg.42451/ malnutrition nigel speight severe me severe me/cfs william weir
    • Replies: 5
    • Forum: Latest ME/CFS Research
  6. Pyrrhus

    Dialogues for a Neglected Illness

    Dialogues for a Neglected Illness is an amazing set of videos raising awareness about different aspects of ME. The first video provides an introduction to ME: https://www.dialogues-mecfs.co.uk/films/introduction/
    • Pyrrhus
    • Thread
    • dialogues for a neglected illness https://forums.phoenixrising.me/attachments/62e930b7-d47a-442c-aa0a-86e5613537e6-jpeg.40691/ severe me severe me/cfs severely ill
    • Replies: 11
    • Forum: General ME/CFS News
  7. Pyrrhus

    Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe Myalgic Encephalomyelitis... (Van Campen et al. 2020)

    A new publication from Van Campen, Rowe, and Visser on the effect of sitting up in severe ME: https://www.mdpi.com/2227-9032/8/4/394 Earlier this year they published a similar study on the effect of tilting the head in severe ME...
  8. Jody

    August 8th, 2019: Understanding and Remembrance Day for Severe ME

    August 8th, 2019: Understanding and Remembrance Day for Severe ME by Jody Smith We in the ME/CFS community mark August 8th, 2019, on our calendars and in our hearts. On Understanding & Remembrance Day for Severe Myalgic Encephalomyelitis, we seek to increase awareness about what our most...