Mary Catherine Stovall,
Aaron B. Waxman,
David M. Systrom,
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is characterized by intractable...
So I got a prescription for Mestinon from my doctor to see if it helps with exertional intolerance (most notably pain/discomfort after exercise). I am freaking out about it though.
For those that are not aware, this drug has been linked as a causal factor in Gulf War Illness (GWI). This...
I have very severe ME. Does anybody know if it's OK to continue supplementing Magnesium while on Mestinon? I'm currently taking 20mg X 4 a day and getting quite severe muscle twitching. I previously injected Magnesium Sulphate weekly but have recently stopped due to hearing conflicting opinions...
Dr.Systrom seems to have quite a success with Mestinon on his patients.
I'd be interested to hear what others WHO GOT WORSE on Mestinon found to be helpful.
Im also wondering if you are mild/moderate or severe and how onset of ilness was.My naive hope is to find similarities in our group and...
A bit late, but I promised to report about Mestinon Trial (@echobravo)
My new GP takes M.E. seriously. :thumbsup:
Not only that, he allows me to trial Mestinon without going through a specialist which would be the normal route for this kind of off-label medication use.
It works well for a...