• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. serafim

    I’m rapidly deteriorating— can relapsing-remiting ME turn progressive?

    I had a series of stressful events in my life that caused me to crash in early july. ever since then, every time i got PEM, i haven’t recovered from it. My baseline was so unstable it was really hard to gauge what was going to give me PEM. I went from moderate to severe to very severe in 3...
  2. SeanQHX1

    Brain symptoms still getting worse - Losing hope

    Hi everyone again. After looking through some old threads, I see that someone previously reported brain symptoms which are exactly like mine and couldn't have put it any better into words. This was after I spent years thinking that I was the only one in the planet with this mysterious brain...