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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. FreudianSlip

    Trying to sort out some new ME/CFS symptoms related to CSF Leak

    I won't go into all the boring backstory because if I did this post would be a lot longer than it is! I was diagnosed the classic ME/CFS differentiating type in 2013 (suffered from symptoms on/off years prior). I have been managing it pretty well over the years with activity pacing and some 'go...