• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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crisis

  1. miriamkf

    Long-term nursing facility in USA

    I am posting on behalf of my dear friend with extremely severe ME/CFS -- I'll refer to her as Lisa. I have done some care-giving for her while she was hospitalized, and mainly serve as her advocate and support her family. Lisa is 32 years old. She is bed-ridden and sits up once a day for 15...
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