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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Pyrrhus

    Autopsy findings: Summary of discussions

    I thought I would start a thread to summarize any and all autopsy findings from ME patients. Please feel free to share any relevant case reports, anecdotes, and studies. I'll start this thread with one of the earliest reports of autopsies in ME patients: Autopsies from the 1955 Royal Free...
  2. Countrygirl

    Merryn's offical cause of death: ME with inflammation of the ganglia

    https://www.facebook.com/meassociation/posts/1734001159990868 The results of Merryn's inquest have just been announced by the MEA, and if you are a member of Facebook, you can C&P the above link to read the whole article. There is just one correction: the MEA claims this is the second occasion...
  3. T

    (US) Brain donation - Brain Donor project

  4. SDSue

    Autopsy Options

    Because of ME/CFS my financial and personal situations have changed dramatically. Thus, I am redoing my will, power of attorneys, and final wishes. I know I am not alone in wanting my body to be donated to ME/CFS research, with a full autopsy so that fellow patients and my children might have...