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[YouTube]Leonard Jason's talk on Myths about ME and CFS

Discussion in 'General ME/CFS News' started by AndyPR, Jan 30, 2017.

  1. AndyPR

    AndyPR Senior Member

    Leonard Jason's 2017 presentation to the Ethical Humanist Society of Chicago regarding myths regarding ME and CFS.

     
  2. AndyPR

    AndyPR Senior Member

    While the video quality on this is poor, I got quite a lot from this presentation. He talks about the issues with broad diagnostic criteria (very applicable to MEGA and all the BPS crowd), and in the Q&A at the end, goes into history of ME that I'd not known before and makes some pretty strong historical claims of corruption.

    ETA: Also makes an interesting remark about how our brains are in a Delta Wave state while awake, which is an explanation for cognitive issues.
     
    Last edited: Jan 31, 2017
  3. Effi

    Effi Senior Member

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    These are the slides of the talk on youtube (no sound):

     
  4. trishrhymes

    trishrhymes Senior Member

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    Just watched it. Very good. So refreshing to see a psychologist who knows it's a physical illness and strongly criticises the British BPS approach, including spelling out the problem with their distorted version of CBT.
     
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  5. dancer

    dancer Senior Member

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    Lenny Jason is a treasure. Over the years I've listened in to CFSAC when he's spoken up there, and followed his research (taking his unique angle to show the problems with definitions, questionaires, and conclusions as applied to ME/CFS). Such a dedicated, long-term gift to our community!
     
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  6. alex3619

    alex3619 Senior Member

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    Most of what he said is known to many long term patients. However much of that might be new to more recent patients. To be fair though, the reason we know a lot of that is prior work from Jason. He has been helping us, as a community and not just patients, for a very long time. There is nobody like him so far as ME is concerned.

    A key thing that distinguishes him from others is his focus on social change. He sees ME as not just a medical problem, but a social problem. We have to change how society views us to make lasting and substantive improvement for the ME community.
     
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  7. Joh

    Joh Inactivist

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  8. Barry53

    Barry53 Senior Member

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    This excerpt is especially good I think:-
    [My italics]
     
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  9. Tom Kindlon

    Tom Kindlon Senior Member

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