Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
Discuss the article on the Forums.

Who else has had stem cell therapy?

Discussion in 'Alternative Therapies' started by AlwaysTired, Apr 27, 2017.

  1. overtheedge

    overtheedge Senior Member

    Messages:
    117
    Likes:
    109
    I did a 100 plus dollars per months stem cell type therapy called laminine for 3-5 months, never noticed any difference
     
  2. AlwaysTired

    AlwaysTired Senior Member

    Messages:
    135
    Likes:
    146
    At least it wasn't invasive (or cost thousands)
     
    Sancar likes this.
  3. overtheedge

    overtheedge Senior Member

    Messages:
    117
    Likes:
    109
    Yeah, that's true, come to think of it my aunt and brother said they had good results with laminine, neither of them has CFS however and I don't know how good their results were or whether they still take it
     
    AlwaysTired likes this.
  4. Learner1

    Learner1 Forum Support Assistant

    Messages:
    2,318
    Likes:
    3,980
    Pacific Northwest
    My doctor has just started doing stem cell, not using one's own fat. Apparently, there are several types, which may be why results differ:

    https://www.cellmedicine.com/types-of-stem-cells/

    He recommended it for another patient whose immune system isn't working and who has chronic EBV. He hasn't recommended it for me but thinks I should consider multipass major autoheme ozone. He is careful but onto latest research, and I trust him.

    I just saw another doctor yesterday, who thinks I may be a candidate for IVIG as my immune system seems to be subpar. (He didn't say anything about Rituximab although I know he knows about it.)

    Both doctors are excellent but I'm left trying to figure my way through this, as I have other complicating factors, too, and all options are pricey with risks involved.

    I think the question is how best to reset the immune system. Is it the correct stem cell therapy? Is it Rituximab? Ozone? IVIG? Or a combination?
     
    pibee and Sancar like this.
  5. gdbennett

    gdbennett

    Messages:
    14
    Likes:
    20
    My sister and I are receiving it tomorrow at Infusio in CA. We've been prepped the past 1.5 weeks to maximize the number, including daily thymus shots, 10 pass ozone, laser bed, lympathic drainage and iv's. It takes 100 days for the stems to multiply and start repairing your immune system. Check with us in a few months and we'll prove an update.
     
    joti, Sancar and Jesse2233 like this.
  6. Learner1

    Learner1 Forum Support Assistant

    Messages:
    2,318
    Likes:
    3,980
    Pacific Northwest
    What are "daily thymus shots"? What is in them and where is it administered?

    And what is a laser bed? And what kind of IVs?

    Good luck with your treatment!
     
    Sancar likes this.
  7. joti

    joti

    Messages:
    5
    Likes:
    14
    @gdbennett
    Did all go well? Any progress so far? I know its only been 60 days but curious if you noticed anything. Hope you both are feeling better!
     
    Sancar and IreneF like this.
  8. Santino

    Santino Senior Member

    Messages:
    207
    Likes:
    16
    @AlwaysTired , @gdbennett

    Hi guys,

    I hope you are doing well and that the treatment maybe helped in the end (in case you tried it @ErdemX )

    I also consider mesenchymal stem cells for a mast cell activation disorder. The aim would not be to cure it (would of course be welcome but that is unrealistic according to research for other diseases). There have been a 1 or 2 randomized clinical trials for MS and also one for crohn's, which both found benefits (especially the crohn's was promising). If I consider all case reports and studies, it seems that it requires multiple treatments like e.g. once every 6 months for 3-4 years. That would mean a few 100k, which I cannot pay...I could afford 1 treatment and maybe 2 but then I would be financially ruined and my family, too. I don't think that 1 treatment will bring any lasting improvement.


    By the way, I would stay away of infusio. Correct me if I am wrong but I think they don't even use mesenchymal stem cells and they also only use stem cells from your own body. Why would you think that this can be effective if you have a chronic illness where your own cells are obviously malfunctioning. This absolutely no sense to me to be honest and I think that this is pure money making. Unfortunately, ALL clinics claim it helped with almost everything and they post successful cases on their homepage but I never spoke to people who actually really improved from this therapy so much that I would consider it a good investment. And it is more that I look for positive results since I consider the treatment myself. This is discouraging and on top of the price you have to pay in the end...But on the other hand, I notice more often in the last year that I want to know now if I can improve or not. If life has something for me or not. 8 years chronic illness and I am ready to force a decision now from life. Mesenchymal stem cells treatment could be such a last attempt before I give up and find a way for my family to let me go from this awful world of daily illness.
     
  9. SunMoonsStars

    SunMoonsStars Senior Member

    Messages:
    153
    Likes:
    53
    @Santino
    What cell clinic are you considering for M Cell therapy?
    I saw your post and last sentences. I’ve been exactly at that door of thinking of last effort. Hugs. Your not alone. PM me anytime if you would like to chat. Blessings are prayers.
     

See more popular forum discussions.

Share This Page