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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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What do you all make of my illness? Esperanza here :)

peggy-sue

Senior Member
Messages
2,623
Location
Scotland
Bunchy's in the uk - tests of any sort are discouraged here.
I know I've got left ventricular diastolic heart problems - my gp won't allow me to have any tests on them at all.
I can't get tested for hormones, VO2..
I haven't been tested for Lyme, for Parvovirus or HHV6.

I did get allowed a haemaglobin measurement - my gp told me this is exactly the same as a haematocrit. This is a lie.
I've performed both tests in labs - the results give totally different meanings and they're tests for completely different things.