Hi there, This is about my appt yesterday with Dr. Bonilla, a new doctor in the Stanford CFS clinic. After a 45 minute appt that was sort of chaotic with the give an take of him trying to get my background and me needing to ask questions, he told me to 1) pace myself and greatly reduce my already extremely reduced activity, saying something about expending energy depletes my mitochrondria (I had told him about doing some walking recently and then in the subsequent days being extremely weak and sick); 2) to follow an anti-inflammatory diet (he not surprisingly recommended the Mediterranean diet); 3) to take curcumin/tumeric and Co-Enzyme Q10 in the form of Ubiquinol; and 4) Take 500 mg of biaxin daily. He gave me a prescription with a year of refills! This came after I talked about my SIBO diagnosis and feeling better when previously taking Xifaxan. About the antibiotics, I thought it was a bit strange because he started off talking about how research was showing that CFS patients had less diverse flora than healthy people. So I was trying to ask him why the long-term antibiotics when he doesn't believe in Lyme (which I have been dx'd with -- see below) and when he thinks gut flora. I think it's because of the SIBO and because he thinks that SIBO and leaky gut are problems and that the abx can help with leaky gut. But again there was a communication issue for various reasons. So, I'm wondering what people think about this treatment protocol. He as also adamant about me not having chronic Lyme despite my two recent positive tests. As for antivirals, I have taken them, but I didn't stick with them in the past due to their extreme side effects. Dr. Bonilla says he sees a lot of people improving on them, but that he didn't want to start me on them until I came back for the next appt in 3 months. Now I'm going to give you some background if you are able to read on: So I was dx'd with CFS in 2015 at the Stanford CFS clinic. I had been dealing with fatigue, pain (also had a fibro dx), and gastro issues for 20 years (I'm 48 now). In 2005, I was dx'd with Celiac Disease (and I seemed a classic case) and went gluten free immediately. But as the years went by my pain and fatigue issues increased. After numerous episodes of being bed bound, I got into the Stanford clinic and was dx'd CFS by a nurse practitioner there. So I had trouble following their treatment plans, which involved antivirals and also LDN and also an herbal supplement for enteroviruses, which I tested high for. Maybe I should have tried harder, but the antivirals crippled me and made it hard to work. Meanwhile, as my health ground me down to a non-functioning cripple, my dad paid for me to go to a functional med MD. Through two tests, she dx'd me with Lyme. This was last year, summer of 2016. By then I was having neurological problems (involuntary movements, big convulsions involving my head snapping back and forth and my arms and legs flicking out. This issue has died down, but it's still there, daily). So I wasn't positive on the FDA/CDC definition of the Western Blot. Close but not there. I was positive by Igenex's defintion, and I was also positive on a blood test that is a 4-month culture done by Advanced Laboratory Services. So, then I was supposed to do a Lyme protocol. The functional MD recommended doing the Buhner herbal protocol. Then she promptly disappeared from the practice. I finally got in with another MD who treats Lyme in the Bay Area. He has ordered a ton more tests, even though I've already done a ton of tests (SIBO breath tests, gastric emptying test, Adrenal test, Doctor's Data stool test, the Lyme tests, mold genetic tests), having to do with Lyme, mold (I used to live in a mold-contaminated apt), and gastro issues. I have not had the energy to get this new litany of tests done. He recommended a battery of supplements, digestive enzymes, bio film disrupters, and so on, and a lot of them I react horribly to. So I'm not doing anything right now, in the interest of keeping my job. Meanwhile, the CFS Stanford clinic calls and says that while I can't see Dr. Montoya (previously the only MD and head of the clinic) I can see the new Dr. Bonilla. And he's who I saw yesterday, as described above.