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Type of ME

Discussion in 'General Symptoms' started by lnester7, Dec 16, 2014.


What type of ME do you have? (if this were the options like in MS)

  1. Relapsing-remitting

  2. Secondary-progressive

  3. Primary-progressive

  4. Progressive-relapsing

  1. lnester7

    lnester7 Seven

    Imagine ME is like MS and we have types: Which type are you?

    Relapsing-remitting MS (RRMS)
    RRMS — the most common disease course — is characterized by clearly defined attacks of worsening neurologic function. These attacks — also called relapses, flare-ups or exacerbations — are followed by partial or complete recovery periods (remissions), during which symptoms improve partially or completely and there is no apparent progression of disease. Approximately 85 percent of people with MS are initially diagnosed with relapsing-remitting MS.

    Secondary-progressive MS (SPMS)
    The name for this course comes from the fact that it follows after the relapsing-remitting course. Most people who are initially diagnosed with RRMS will eventually transition to SPMS, which means that the disease will begin to progress more steadily (although not necessarily more quickly), with or without relapses.

    Primary-progressive MS (PPMS)
    PPMS is characterized by steadily worsening neurologic function from the beginning. Although the rate of progression may vary over time with occasional plateaus and temporary, minor improvements, there are no distinct relapses or remissions. About 10 percent of people with MS are diagnosed with PPMS.

    Progressive-relapsing MS (PRMS)
    PRMS — the least common of the four disease courses — is characterized by steadily progressing disease from the beginning and occasional exacerbations along the way. People with this form of MS may or may not experience some recovery following these attacks; the disease continues to progress without remissions.
    Woolie likes this.
  2. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

    I had one 'relapse' - I nearly recovered from the initial infection over several months. From then it has been a long, slow progressive worsening. Would you call that primary-progressive or secondary-progressive?
  3. ukxmrv

    ukxmrv Senior Member

    I don't think that I am any of these. Comparing to 4 different MS types which seem to be based around relapsing/remitting isn't going to be close enough to the course of ME in all patients.

    I've never had a remission and my disease has decades and years when it is a little better and then the same when it is worse.
    justy and Wildcat like this.
  4. Strawberry

    Strawberry Senior Member

    Seattle, WA USA
    I voted PPMS as I am being optimistic. I have had a constant slow downward spiral over 25+ years, but I am hoping that with my next home (less air pollution) that I might improve some. If I don't improve at all within a year, regretfully I would have to classify myself as PRMS...
  5. lnester7

    lnester7 Seven

    I did Secondary-progressive, I had same pattern but 3 remissions instead of one at beginning then continuous decline. I am just using MS since I always wonder if we have remitting relapsing types.

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