International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
Discuss the article on the Forums.

Tips for staging a screening of Forgotten Plague

Discussion in 'General ME/CFS News' started by Kyla, Sep 25, 2015.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,227
    Canada
    http://www.forgottenplague.com/tips-for-forgotten-plague-screenings/

     
    panckage, mango, Snowdrop and 6 others like this.
  2. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,227
    Canada
    @Snookum96
    It looks like they have templates for promotional materials
     
    Sasha likes this.
  3. Snookum96

    Snookum96 Senior Member

    Messages:
    290
    Likes:
    553
    Ontario, Canada
    Thank you Kyla!

    Those are good points, it does seem a bit overwhelming to have to recruit too many people individually!
     
    Effi, Sasha and Never Give Up like this.
  4. Sasha

    Sasha Fine, thank you

    Messages:
    12,812
    Likes:
    34,307
    UK
    This is very useful advice!

    Very clever idea to get a guest speaker.
     
  5. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,535
    Likes:
    8,528
    Some topics and themes that come up in the ME documentary, Forgotten Plague:
    ------------------

    I'm working on a press release for the screenings of Forgotten Plague which will go out to national and some local media outlets. I decided I would watch it for a 3rd time to try to get some inspiration.

    In case it is of interest to anybody, I've listed below points or themes that are mentioned in the film.

    - sometimes it has a sudden onset and people can pinpoint exactly when they became ill

    - There can be disbelief which may be due to the invisible nature of the condition

    - People can struggle to get a diagnosis

    - It can feel that your entire life has been stolen from you

    - Often lose the ability to work

    - Often struggle with education

    - Covers the history of the illness

    - Covers some of the symptoms including light sensitivity

    - Mentions how some people can be severely affected including need a wheelchair and also so very severely affected (Whitney Dafoe). Mentions how some people can spend most of today lying down

    - Mentions Ampligen

    - How the illness can often be long-term

    - How it can prevent people getting married or damage relationships. Or that a person will too ill to have children

    -Highlights how some patients were active before the illness

    - Highlights some research that is being done

    - Highlights how it can affect one's ability to have a social life. One can be stuck at home a lot.

    - Includes a radiologist (i.e. at former doctor who is a patient)

    - Highlights how there has been a lack of research

    - Highlights how the name Chronic Fatigue Syndrome trivialises the suffering of the condition.
     
    mango and BurnA like this.
  6. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,874
    Good summary Tom. Where is it being shown in Dublin ?
     
    Tom Kindlon likes this.
  7. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    1,535
    Likes:
    8,528

See more popular forum discussions.

Share This Page