Suggestions for specialists in U.K?

[Arise]

Hello I just wanted suggestions for any specialists that can help with ME/CFS, they don't necessarily have be ME/CFS specialists, but I would consider a good rheumatologist or neurologist.

I already know of Dr Myhill and have already done the mito test and followed her suggestions. Julia Newton I have heard of but I am unsure if I am able to choose to see who I wish on NHS. Which leaves me with private consultants and of course KDM.

I was thinking seeing a good rheumatologist to rule out lupus and mast cell disorders. Of course there are so many avenues to choose from but with limited budget and energy, I would best like to channel these to what would be most useful.

Any suggestions appreciated

 

[tandrsc]

The Countess of Marr asked about the question of choice in parliament, the answer was yes, you can.

Here's the link:
http://www.meassociation.org.uk/201...-their-own-choice-of-consultant-24-june-2014/

Julia Newton is certainly doing interesting things, here's an article from August last year:
http://www.cortjohnson.org/blog/201...ria-chronic-fatigue-syndrome-dr-newton-talks/

I don't know if she sees patients direct or whether she is attached to an ME/CFS clinic.

You could try emailing the ME association on meconnect@meassociation.org.uk to ask them, they might know.

 

[peggy-sue]

Your gp should be able to get you tested for Lupus.
It was one of the few things I did manage to get tested for, although it did help that I had a rosacea like rash on my face at the time.
It is done on the NHS.
But maybe you should take some dirty sandpaper to your cheeks first - get some spots and flakiness going in order to convince your gp that you need the test done.
It depends on your gp - if they're the sort that want to refuse you tests ("because they only convince you you really are ill") or not.