The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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Some Parkinson's misdiagnosed as ME(CFS)

Discussion in 'Latest ME/CFS Research' started by leelaplay, Apr 2, 2011.

  1. leelaplay

    leelaplay member

    Tate Mitchell posted this to co-cure

    Mov Disord. 2011 Mar 29. doi: 10.1002/mds.23563. [Epub ahead of print]

    Decades of delayed diagnosis in 4 levodopa-responsive young-onset
    monogenetic parkinsonism patients.
    Ling H, Braschinsky M, Taba P, Ls SM, Doherty K, Hotter A, Poewe W, Lees AJ.

    Reta Lila Weston Institute of Neurological Studies, Institute of
    Neurology, University College London, London, United Kingdom; Queen
    Square Brain Bank for Neurological Disorders and Institute of
    Neurology, University College London, London, United Kingdom.

    BACKGROUND: We report 4 patients with young-onset monogenetic
    parkinsonism, each of whom was misdiagnosed with either a psychogenic
    movement disorder or chronic fatigue syndrome for 10 to 23 years after
    the onset of their first symptoms.

    RESULTS: Once the diagnosis was eventually made, they all had a rapid
    and excellent response to levodopa, albeit with the early appearance
    of interdose dyskinesias in 3.

    CONCLUSIONS: We discuss possible reasons for the missed diagnosis
    despite the relentless progression of their motor handicap. DAT
    scanning supported the revised clinical diagnosis of parkinsonism.
    2011 Movement Disorder Society.

    Copyright 2011 Movement Disorder Society.
    PMID: 21449012 [PubMed - as supplied by publisher]
  2. Enid

    Enid Senior Member

    Thanks shrewsbury - I can believe all this as UK plods through revealing at last all that is wrong with the establishment here.
  3. ukxmrv

    ukxmrv Senior Member

    Given the appalling service that Queen Square gives to ME patients this is interesting. They refused any physical testing to me and insisted that ME was a psychological disease.

    Maybe if they treated their CFS and ME patients to better testing maybe something would have come up earlier?

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