August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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  1. Christopher

    Christopher Senior Member

    Anyone used or is using his protocol or would like to discuss it?

    I have not seen him (yet) but my GP was willing to prescribe Questran for me, and I am currently in my 3rd week. Initially (for the first few days) I felt much calmer on it. I now don't really feel a difference between pre-Questran and now.
  2. lostinthedesert

    lostinthedesert Killer, Clown, Priestess

    I have seen him, read his books repeatedly and discussed with him a bit. My detox on csm was fierce but eased up after a month. I had very nasty Mrcons. The culture technique shoemaker specs is essential. Other cultures had failed to find them. Treating them helped my energy a lot and got me well enough to do basic self care. He cant cure folks who have been sick for a long time but he can help. Epo can help too but is expensive. More later, S
  3. InvertedTree

    InvertedTree Senior Member

    I tried Shoemaker's protocol including Questran, VIP, etc....

    The Questran did help while I was living in a moldy environment. I tried it again about a year after being out of the moldy environment but it didn't help this time. The VIP turned out to have little effect on myself and others I was in contact with. He's kind of fallen out of favor with other ME docs for some reason.

    There are a couple blogs out there that talk about his protocol, or were for awhile. My brain won't cooperate with remembering the blog names though.

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