Going back to
@alex3619 's first post in the thread re Glutathione and Richvank, jut anecdotally 6 weeks of IV glutathione lasyt year gave me 8 of the best weeks ive had in 7 years - was out of bed all day, gardening, hovering, cooking (for fun) started planning to drive again, walking without my wheelchair. Then it ended and now back to square one again. Cant affrord iv Glut in the UK. (I was also having myers type cocktails so may have helped a deficiency, which I seem to have plenty of despite good diet)
Like
@Sasha I also had a long remission, which ended 7 years ago. I know I can get better and feel better - why cant we sustain it? but if we can have it in the past, we can have it again!
@justy , my symptom-twin... I've started using
Regactiv's Detox & Liver Health probiotic. I'm talking it up everywhere, but I have no stake in the company. They've engineered a strain of
Lactobacillus that releases glutathione into the gut. It doesn't last long, so you have to keep on taking it, but the results are awesome. Probably nothing close to getting an injection, but may still be helpful for you if it was for me.
So we know that its a mitochondrial problem but whats seems to be missing to me is why the bacteria, virus, parasite or autoimmune response cause it?
Just spitballing here, but it may be that immune cells require more energy-molecules to function than other cells; and so might neurons. The immune system, nervous system, and muscles may 'feel' the lack most, because they require a lot of energy to do their jobs.
When the immune system tanks, that leaves the road open for a wide variety of opportunistic pathogens. Some of these pathogens actually suck up the molecules we require for energy molecule production, compounding the problem. For example, there are pathogens that really like B12 and will use it before your own cells if they can.
There are known diseases effecting mitochondrial or carbohydrate metabolism function - some rare, some not so. Do any of these resemble ME/CFS?
They do enough that I kept thinking I had one of them. I was not one of the 'obviously infectious onset' patients -- I had a series of adverse health events from which I never fully recovered, over and over again -- which, to me, pointed to an endocrine issue. Over and over again I thought I had an inherited mitochondrial disorder of carb metabolism. So symptoms can be quite similar.
There are even some -- more than you'd think -- that strike a person in their late 20s, early 30s. There's something mystical about that time period in the human body.
-J